UTI' growing up and need help

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So I’m struggling to understand what is happening with my body at the moment and I am terrified. I have had a total of 7 uti’s in the past 10 years, but have had them on and off since I was 3 years old. The ages I’ve had them are 3 (multiple), 9 (multiple), 11 (most painful I’ve ever had), 12, 15, 20 (x3) and 21. Ultra sounds when I was younger found nothing wrong. However, since I was 11, after a very painful infection, I have these flare ups that feel like minor infections and are just really irritable, but aren’t infections at all. Nothing is found in the samples. They can last from five minutes after I go to the toilet to up to a few days. They scare me a lot because I fear they may turn into a full blown infection. Is it possible that the horrible infection I had at age 11 could have caused some internal damage to cause these flare ups?

I refuse to take antibiotics when I don’t know for sure if I have an infection as my biggest fear is the bacteria becoming resistant. My doctor did say that the amount of urinary tract infections I’ve had will not cause bacteria to become resistant and it has to be more frequent. What do you guys think? I was also wondering if anyone has experienced this issue before? I would see a specialist but here in Australia it’s too expensive for students and I currently don’t have the money to do it. I’ve chewed a couple of garlic cloves for now to see if that helps and have also drank a lot of lemon tea. Lemon although acidic when ingested has alkaline properties after digestion. 

Anyway I would really appreciate any opinion thrown my way about what is in this discussion. Thank you!!

 

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  • Posted

    I've had a continuous infection since I was 13 (now 35) given endless antibiotics & hospitalised on at least 8 occasions for I.V antibiotics but all urine samples in dip test shows infection but when there sent to the lab the cultures don't grow bacteria, iv had 3 CT scans, many untrained sounds, had stones removed from my kidneys, honestly you name it iv had it done but nobody on this planet seems to be able to find out why I have all the symptoms of uti but no infection, it's ruining my life I'm in constant agony, now I'm on a nightly antibiotic for life & I'm awaiting a cystoscopy bladder scan to see if the issue could possibly be that but after over 20yrs I think there clutching at straws iv tried literally every home remedies that Google has to offer and still get nowhere, but after joining this thread iv realised I'm not alone and there's a good few people having the same issues x

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    • Posted

      Both of you might try finding out about IC - Interstitial Cystitis.  It's a condition where the bladder lining is scarred from previous infections (or other, unknown causes), which often makes you feel like you have an infection when you actually don't.

      I don't know how it's treated, I only came across it when I was looking for something else!  There's a site called cystitis and over-active bladder (COB for short).  You could try searching for that and see how you get on.

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    • Posted

      Thank you Miriam I have actually recently looking into interstitial cystitis and it seems the most likely bet right now. I'm seeing a specialist sometime in the next few months to see if we can get to the bottom of the issue. Thank you!

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    • Posted

      Swest I'm sorry to hear that this is happening to you. Its an absolute shame. I hope you find the answers you are looking for. I havent yet had to go on IV antibiotics and hope I never do. Did you have to go on IV antibiotics because normal antibiotics weren't working? How fast did the IV antibiotics work? 

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  • Posted

    I can't help you much but I have had similar...just on and off UTI symptoms (fullness in bladder) for a few months now on and off and originally had a UTI. Since then after numerous antibiotics I've been left with the symptoms but no infection. At this very moment, I'm symptom free...touch wood lol! And I was given anti bladder spasm medication which seemed to work but stopped working after a week or so, now I feel I just have to deal with it. Just know you're not alone! I have a referral to have a Urogram? But that could take months as I'm in NZ!! Keep me posted on how you're doingsmile

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  • Posted

    It could be that the tissue of your urinary tract is super sensitive now due to previous infections, or just always has been. I know I have to be really careful about what I eat (no soda for sure) and alway keep ridiculously clean (especially during my period). I even sterilize my underwear! I use everything for sensitive skin, from detergents to sanitary products. It sounds like overkill but I don't care. I never want to experience another UTI.  

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    • Posted

      I totally get what you mean emmy, 

      I can drink soda but in great moderation. I used to drink up to two cans of coke a day which caused a serious infection after 2 years of being clean. I ended up having to come off the coke straight up and drink only water. I had massive caffeine withdrawal symptoms. it was insane haha. 

      Yeah I keep as clean as I possibly can. I also drink lemon water in the mornings because it can make your urine more alkaline. Lemon has acidic properties but once it is metabolized it becomes alkaline. Amazing how it works. I found that when i drank green tea with a small amount of lemon juice I had no flare ups. Had to come off it though because the lemon was doing something to my teeth!

      Yeah i worry about getting my period but I've never actually had any issues with it thank goodness. HAving a flare up or uti WHILE on your period sounds awful!

      Thank you so much for your response! 

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  • Posted

    Try straight cranberry juice that helps with the pain. I had same thing and it was never infections and I went to special and had lots test run on my bladder And they found lots of tiny cyst that get inflamed and hurt really Bad. I have to take meds some times for a month to get the cyst from being inflamed but cranberry juice and got baths help
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    • Posted

      Thank you! Yeah I drink cranberry juice all the time. It can definitely help smile 

      I'll definitely ask the specialist about that to see if I can get that checked out. I'm sure if there is something seriously wrong we will definitely get to the bottom of it. thank you for your response!!

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