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I'm 23 and I've been struggling with this for a couple years but I've never been able to do anything about it because my test results ALWAYS, always come back negative.
Essentially I have every symptom of a UTI but no proof that one exists. I've researched STIs/STDs for fear of those but I have no other symptoms other than extreme pain when I pee and/or if I have sex. It's hard to narrow down when my symptoms seem to pop up because it just comes in waves--for example, I could be alright for WEEKS before another episode happens, or I could go a day and be fine but then have it pop up.
The other weird symptom I have (TMI) is that once I try to pee, if I've already tried a couple minutes before there obviously won't be any liquid to pee out, so I'm just struggling with my body's desire to pee and it's painful because there's nothing THERE to pee. Sometimes if I can get into weird positions I can pee a little at a time for relief but this obviously interrupts daily life a lot.
I've been to the ER, I've had multiple labs run, I've taken antibiotics a couple of years ago (which now thay I live a more holistic lifestyle am kind of against now)--I was even taking the D Mannose supplement to see if that would calm my system down.
A weird thing that happened with me a couple of months ago was an allergic reaction I had to taking an antibiotic called Minocycline--my derm had prescribed it for my acne. (This is why I am now holistic.) My health coach believes that this antibiotic wiped my system of ALL bacteria, so my thought was maybe that my pH levels are still off? But that STILL wouldn't make any sense because I've had this problem for the past 4 years
As a side note, I do take care of myself down there--regularly washing (no soaps though!) and no douching either as that's bad for the pH too I believe.
I've even tried to researching to see if it's the shape of my urethra that's the problem, or to see if it could be something deeper like a kidney infection and/or bladder infection. I'm so lost and sick of being in pain, please if you have any idea what this could be please help me!
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