UTI with ECLOI ESBL
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My 15 year old daughter has been suffering for the pass 19months with and UTI when the uti first started it was all UTI symptoms with no bacteria growth but the drs. Was still treating her with antibiotics august 2016 was the first time she ever had a positive culture it was ecoli esbli but we wasnt aware of until may 2017 so between august 2016 and may 2017she was getting treated with oral medication She have seen 4 urologist, 2 pediaticians, gyn,nephrologist also she has taken had 49 doses of oral antibiotics, hospitalized on 4 different occasions and all they tell me is her bladder is severly inflamed during the biopsy in november i was also told shes has urine backing up in her uterus so far she's had two biopsy, two cystograms,VCUG, ultra sound, cat scan with and without contrast and eveytime we leave the dr. She has the same diagnosis inflamed bladded but no specific reason why
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marilee43089 frankie94663
Posted
Hi Frankie. Me again. You didn't mention in the other thread about the urine backing up. In her uterus?? How can that be? Did you mean backing up into her kidney, like reflux? Were all the tests normal? Are are ureters normal?
frankie94663 marilee43089
Posted
Sorry i forgot about that part yes she has urine backing into her uterus they informed me of that thusrday he said her OS was open and her urine was going into the uterus they also said it was swollen. she was seeing infectious disease and he no longer see her because he says whatever is wrong with her bladder is keeping the medicine from working so until urology fugure out whats wrong with her bladder he cant help her so she has really been having a tough time now shes all depressed, has a superpubic tube ,she lost all intrest in school . On a good day she may sleep 6hours she cant focus my daughter is a good student straight A's even started college work until her car accident 4 years ago she never missed day of school all of this is tearing her down
marilee43089 frankie94663
Posted
Gosh, I am so sorry to hear all this. I wish I or someone had some answers. Until then though, I and others can be a listening ear. I have never heard of anything like this. It was just within the last year and one-half that I started researching UTI's and urinary problems. Prior, I knew just about zero as I had not had any problems in that area. Now, I susbscribe to various websites and have read a lot of Urology scientific journals. It pays to be informed so that we can identify a 'quack' if we run across one.
I do understand the Infectious Disease doctor's point. Until they identify the cause of the infection, treatment will be futile.
Are you in the UK, USA or elsewhere?