1. Community
  2. Brain and nerves
  3. Neurological Disorders

Utter confusion

Posted , 5 users are following.

This discussion has been locked due to a period of inactivity.
charlie19
charlie19

About 12 yrs ago I developed a raft of MS type symptoms, tingling on face, extremities, fatigue and weak legs. These last approx 2 months.  I had an MRI, which was clear. I slowly afterwards made good progress. In the intervening years I have experienced many of these symptoms in very mild forms, in addition to tinnitus for the past 10 yrs and issues with my lips and tongue, also now about 10 yrs duration. The latter just becoming easily fatigued when talking etc. None of these symptoms have progressed or developed into anything significant. However seven weeks I was hit with severe tinnitus, quickly followed up by vertigo and headspins. These have continued unabated since. In addition for the past 4 weeks I have had tingling again in my extremities, off and on, including my face, nose and forehead. All intermittent. My legs and arms are fatigued, have had muscle twitching etc. I had another brain and spinal cord MRI last week, all clear. The symptoms remain. I should also say I have pass all of my recent neuro tests, sensory, strength, coordination and balance with flying colours...all of my three doctors and neuro are baffled at this stage. As I am. Any thoughts or advice would be be most appreciated. Anyone out there with a similar story? MS it seems has been ruled out. MN thankfully too considering how long some of these symptoms have persisted and the fact that my strength and balance are all good.

Apologies for the rambling post in advance.

0 likes, 12 replies

12 Replies

  • em-01
    em-01 charlie19

    Posted

    Have you tested for vitamin b12? The symptoms you have are very similar to a b12 deficiency/pernicious anemia.
    • charlie19
      charlie19 em-01

      Posted

      Thank you. Strange you just ask as I did today, should have said on my initial post, results tomorrow.
  • angela59190
    angela59190 charlie19

    Posted

    Did you have emg of your muscles? To rule out ALS? The vertigo suggest a possible inner ear issue but tye muscle twitches suggest something else. It is very hard for neurologist to figure iut what is happening when the tests don't yield answers for them. I Hope it gets better and you find some answers.

    • charlie19
      charlie19 angela59190

      Posted

      No not as yet, might be a good idea. In terms of the twitches, looking through old diaries I had them first way back in late 2006. I know I have had them off and on, more off than on though since. They have not been there for quite sometime until very recently. Back in 2006 they arrived on the back of about 3 or 4 months of other neuro stuff, tingles, fatigue and weakness. Same pattern this time really, although fatigue and twitches more of them this time.
    • charlie19
      charlie19 angela59190

      Posted

      No not as yet, might be a good idea. In terms of the twitches, looking through old diaries I had them first way back in late 2006. I know I have had them off and on, more off than on though since. They have not been there for quite sometime until very recently. Back in 2006 they arrived on the back of about 3 or 4 months of other neuro stuff, tingles, fatigue and weakness. Same pattern this time really, although fatigue and twitches more of them this time.
    • angela59190
      angela59190 charlie19

      Posted

      How are you feeling no weakness right? Twitching is normal all thw neurologist tell me its the company they keep I have been told. So if you jave no weakness you should be safe.
    • angela59190
      angela59190 charlie19

      Posted

      I would just see a neurologist to make sure you are going to be fine. If you had twitches before it isn't from ALS. Weakness tingling could be a neuropathy. So you still need to see a neurologist. Plus you are still young and you could have a genetic neuropathy.

    • charlie19
      charlie19 angela59190

      Posted

      Thanks Angela. I have fatigue but no pronounced weakness in terms of legs and arms. They still feel strong, although tired. Thanks for the reply.
    • charlie19
      charlie19 angela59190

      Posted

      You are right I have had twitches to some extent or other since 2006...possibly before.
Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.