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V1 Branch pain only

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stayc01
stayc01

I have been having intermittent shock/stabbing/burning pain in my forehead and eye area..sometimes a little bit of my nose. I went to a neurologist and he says it can't be TN because it is usually in other branches of the nerve and has triggers ( I have no triggers at this point). Does anyone else have only V1 pain? Can this be TN? 

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  • eileencee
    eileencee stayc01

    Posted

    My pain is in the side of my nose mainly.  It used to be in my lower eyelid too, but no longer.  When I eat and the pain gets worse, it goes up into my forehead and up into the top of my head.  I had an MRI which shows a small vascular loop next to the Trigeminal nerve, so I’m a candidate for a MVD. However so far, I get periods of remission lasting up to a year.  But lately the remission periods are getting shorter, and I’m getting more and more fed up of the pain.  I’m thinking of getting a MVD, but scared stiff.  I’ve always taken carbamazepine and sometimes baclofen, it’s been about 8 years since it started. 
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