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Vaginal lichen planus

Posted , 14 users are following.

GailD
GailD

hi, can anyone tell me what treatment they are having for this please? I’ve had OLP for 3 years now and started with VLP last summer. Waiting for dermatology appointment but the discomfort even when using the cream isn’t pleasant. Any thoughts, advice or ideas very welcome please. 

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  • lorraine72830
    lorraine72830 GailD

    Posted

    As we fellow sufferers know this is a really nasty disease and to have it where we all have it is really horrible and I really don't think anyone can know what it's really like until they have got it.I really don't understand why more hasn't been done to try and find out why we have got it and to try and find a cure-very frustrating!!!!

  • jane63952
    jane63952 GailD

    Posted

    Hi there I’ve had vlp for about two years.  Started on clobestol and also topical hrt.  I’m now also on prednisolone suppositories as well.
  • patty15138
    patty15138 GailD

    Posted

    Hello Gail, I have VLP also. It started a couple of years ago, + have had flares all the time.  It seems to go away but comes right back!  I can't stand it anymore!  I  went to a Naturopathic Dr. every time I have a flare up + he said my VLP is a Candida/Fungal outbreak. So he put me on probiotics, colloidal silver gel + with an antifungal pill.  It goes away but comes back now, the antifungal pill cannot be taken all the time because it won't work after awhile.  You know it helps to take away everything.  The whole thing if it is fungal I have to stay away from sugar, gluten + dairy.  I have been sticking to it but it's hard to know what the ingredients are in everything. The antifungal pill is called Fluconazole which comes from my PCP.  I beg for this pill because not only does it work for the skin it also helps the sick feeling I get.  Do you feel sick as if you have the Flu? And another thing I was sweating profusely for about 6 mos. or more.  I went to every Dr. possible with no results so that is why I think it is a fungal/candida breakout on the skin. When I start the diet, take the pill use a steroid gel (Halobetasol) + Vagicaine, is generic for Vagisil, I start feeling better.  Now it started in my mouth, my stomach feels like it's in my eyes.  So sorry for the long post,  I really want to try one of these other medicines talked about here like Elidel which seems to work for many.  Thanks for listening, I am going out of my mind!

    • GailD
      GailD patty15138

      Posted

      Hello Patty, I’m so sorry you are struggling so much. This forum is a real,bonus for me as we can share things and people understand what we are talking about and share things that have worked for us.. the underlying thing for me on all this is stress and when 8m going through a stressful time my outbreaks increase. My VLP seems under control,now with Estriol, and oestrogen cream and it has really helped. I don’t have any flu symptoms or feel sick at all, so I’m sorry I cant help

      with anything there. Certainly changing diet has helped. I no longer eat citrus fruit, fresh or juice, chilli or any other spices, restrict sugars, very little wine, no spirits. I haven’t had to give up dairy but I know it has worked for many. My doctor has advised me to always wear lose cotton clothing so linen earns its keep in my wardrobe! I have also taken up gentle Pilates and yoga and this has also made a great difference to my mindset and wellbeing and helps alleviate the stress. I hope any of our comments and suggestions may help you, meanwhile take good care, Gailx

  • patty15138
    patty15138 GailD

    Posted

    Thank you, Gail for answering my post.  You know I was on Estrogen, but found cysts in bladder + I was afraid after that. I also have Fibromyalgia which takes much out of me at times.  But maybe if this keeps up I will go back to the Estoril Vaginal cream?  I am so much in pain when I have a breakout, + feel so sick + what helps is the antifungal dx.  Thank You so much for your comments, I do really appreciate them!
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