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what a revelation to find that I am not the only woman with this stressful disorder.
It took me five different lots of anti biotics ,almost constant urinary tract infections,2 hospital a and e visits before finally getting my gp to make an urgent referral to gyny I decided not to wait the 4/5 weeks and which would have probably meant being seen by a registrar and go privately, I couldnt afford it but was desperate for a diagnosis and relief.
Within 20 minutes private consultant had diagnosed condition hospital and two gps had missed, treatment started next day, two weeks ago, for the first time in 3 months I am getting some relief though does come back in short spasms.
First thing I would say that whilst not a stress related condition does tend in some people to be agrivated by stress.
Also when a bout comes on it seems to help to be busy,walk also warm bath gives some relief.
I dont have a man in my life so the sexual aspect is not an issue however during a spasm ones vagina ,clitoris feels sore and burning which can feel like cystitis.It seems that part of the diagnostic problem is that it can occur with cystitis or be mistaken for it.
From my experiance and reading about the experiances of others of you it needs more awareness by the medical profession in treating this disorder.
Im back to the specialist next week another 120 pounds but if it gets results I will find it.
Anyone know of a support group for this if not do fancy staring one with me,xx to all fellow sufferers
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