VAIN2

Posted , 3 users are following.

I've recently been diagnosed with VAIN2 which was treated with cauterisation.  There is very little information about this and I'm just wondering if there is anyone else out there who has had the same? Apparently it's quite rare, but I do wonder if this is simply because it isn't often picked up? I have a follow up in 6 months with another colposcopy and will have to be monitored long term.  Ugh!!

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4 Replies

  • Posted

    Hi Kathryn What is Vain2? And what are your symptoms? I haven't heard of it but as you say maybe one of those things that isn't talked about!!! My doctor has never mentioned Atrophic Vaginitis! I had to find out for myself what was wrong with me!

    So tell us more as then we may be familiar with your symptoms.   

    Regards Miss Monty. 

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    • Posted

      I didn't have any symptoms, my gynaecologist saw it when he was trying to find my very elusive cervix! Apparently, he used 2 dyes, iodine and ascetic acid and when an area of my vagina didn't take the dye he took 3 biopsies which showed VAiN2. It's graded the same as CIN.
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  • Posted

    http://www.macmillan.org.uk/Cancerinformation/Cancertypes/Vagina/Pre-cancerousconditions/Vain.aspx

    the site above is very informative. I had cauterization of the cervix 55 years ago and there were no problems thereafter. Had exams every year. Sounds like this could be similar, but affecting the vaginal tissue instaed of the cervix. Believe it was called dysplasia (not sure though) and was also considered pre-cancerous.

    I was young and didn't stress over it. Probably the best thing you can do for your body. Just go for your exams to be safe. Best of luck.

    Emis Moderator comment: There is also a patient lefalet on patient.info as below.

    https://patient.info/health/Vulval-Intra-epithelial-Neoplasia.htm

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    • Posted

      Thank you for your response. Yes, VAIN is like CIN, but affects the vagina rather than the cervix. The moderator has mistakenly directed me to a patient on vulval intra-epithelial neoplasm, which I haven't got!  I have had the area cauterised and have to go for another colposcopy in 6 months. Fingers crossed that all is well then. 
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