Vasculitis?

I was wondering if Marie found out anything since I have some of the same symptoms.  I do not have a diagnosis of vasculitis, but I believe that is what I have.  My Rheumatologist disagrees, and told me I would have been dead in three months, he doesn’t have the best manners.  I’m not sure my Primary Care doctor and cardiologist believe the symptoms I describe.  Right now, I am just so frustrated because I don’t know where to turn.  Looking back now, I believe I have had symptoms for at least two decades, not knowing what it was. 

I am a 49-year-old female.  Back in the mid 90’s, the skin on the top of my feet used to hurt.  But there was never any rash or irritation.  I assumed it was the way my boots were rubbing.  I then noticed that the skin on my inner thighs was frequently sore, but no irritation or rash.  Again, I assumed it was bad seams in my uniform.  Next, when I would run my fingers through my hair, my scalp seemed tender and sore.  Then it was the skin on my left inner forearm.  I went a few years in between without any symptoms.  Then I started to complain of chest pains, but no cause was identified.  By the year 2000, my knee joints were really sore and continue until this day.  In 2010, I started getting symptoms of dizziness, ….Fast forward in Aug 2012, I started having heart palpitations.  In 2013, the bottom right heel of my foot began to hurt.  I could not put weight on it, it felt like a vein was bulging.  It would last a month at a time.  Doctors would take blood tests but found nothing.  At night, my calves would hurt so bad, like the worse charlie horse ever.  My lower back started to hurt and cramps in my neck.  

In the latter part of 2013, I started feeling little piercing pains in different parts of my body, like I was being pinched.  It would come and go.  I was told it was fibromyalgia.  By this time, I could tell the pain was coming from a vein, because I could trace it on my ankles.  In 2014, my ears began to feel pressurized or clogged, I was told it was allergies.  In February of 2016, I started having problems with my sinuses.  In June of 2016, I started having pain on my left side, I was told it was flank pain; I believe that pain has now moved internally to an organ, as the pain is no longer close to the skin surface.  I am having stomach pains.  In December of 2016, the pain started feeling more like a burning pain in my arms that would come and go.  I also started feeling pins and needle type pain in my fingers and in between my toes.  Again, the pain comes and goes.  I do not take any medication for the pain because it does not stay long (Although my rheumatologist did prescribe tramadol).  In January 2017, I started having really bad heart palpitations with even the simplest tasks, like walking up the stairs.  I have pain in my chest which feels like it is definitely in the branches of my veins/arteries.  I believe now my eyes are affected, they are painful, very itchy, red, and have veins that seemed to be constantly inflamed that I keep thing I have a hair or an eyelash in my eye.   I have this pressure at the lower back of my head.  I can also feel it in my throat (both inside and on the skin) for the past several days.          

I am constantly told that I am depressed or have anxiety.  I have had several echo cardio, an MRI of the brain, sometimes my liver panels (AST/ALT) comeback high.  Then it is normal the next time.  The same thing with the kidneys.  My last tests in Dec 2016 shows normal C3, C4, ANA.  MY RF is elevated 44, ESR 36, and CRP is constantly up and down.