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Just found this site. Glad I did.
Another PVP sufferer. Had my snip done in October 12, local GP practice but got a GP who was aquiring the 'skills' to take over the practice once the main GP retired.
Well, he made a mess, first half fine, second half painful. Bust a blood vessel to, so that was stitched up to the VAS.
Rested after, ended up with two large haematomas one each side and a wound that didn't heal for 4 weeks and needed antibiotics.
That all eventually cleared but was still in considerable pain, especially the 'messed up side'. Off to GP, then referred to Urology. Scheduled for an epididymectomy soon now.
Won't do both sides due to risks of losing a ball, so it's one at a time, and if it works, as it only has a 50% success, they will do the other.
Pain isn't great, I won't take meds for it, other than ibuprofen etc, but that doesn't do much. Offered the usual gabapentin etc which I've refused.
As others have said, I queried what would happen if I got PVP and how would we manage it. The GP at the time said 'your Urologist would sort that' - erm I don't have one. No mention of how common the pain is 5-10%.
Only when I saw the Consultants in Urology did they say how comon it was. It's a very difficult 'condition' to treat is all they have said.
Current choices. Wait - I've done that, now surgical removal of my epididymus, possible the less sore one two. High failure rate. If it doesn't work, then de-nervation may be a choice - that will leave your nether regions numb.
Friggin fabulous. Simple procedure that you don't really fancy, but 'pressure' dictates. Totally ruined our sex life. I get bad pain after, and it takes days and days to subside. Also the site of the burst blood vessel is extremely uncomfortable (between ball and penis) so the consultant will do some 'clearing out up there two.
Seriously hissed off by it - WHY DON'T THEY TELL PATIENTS ?
I've complained officially, general sorry and denial of PVP. Complained direct to the GP that did the Op - he now has the local contract. I've asked him to ensure he makes patients aware of the consequences.
Oh and it's pot luck if you get it. doesn't matter if you are fit or not. It's really affected me and my sport as a cyclist (ouch) and I can't stand beeing battered about down there - so stuff like go-karts, fair rides that are bumpy are a no no.
The epididymectomy is going to be nasty, as that's quite a recovery process. I asked about having both done, but they said if it went wrong I would lose both balls. Best do one at a time, then I'd have one at least they said. I said, I'd be happy if you took them both off !
Never again. Feel like I've freely mutilated myself - could have done a better job with two bricks.
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