venlafaxine withdrawal- please help!!
Posted , 169 users are following.
Hi there, ive just joined on here to get some advice and support... i was prescribed venlafaxine xl (modified release) 10 yrs ago for severe depression after my daughter was born, over the years this has been increased to 225mg a day. My partner and i want to have another baby and was aware of the effects venlafaxine has or could have on a unborn child so i went to my psychiatrist to ask for there help to come off it, they drew up a plan where i would gradually reduce my amount by 37.5mg each week. This was 6 wks or so ago and am now on day two of no venlafaxine what so ever.... but im suffering really bad withdrawal symptoms.... excruciating headaches, shaking and shivering, nausa. This evening i had a major breakdown and couldnt stop crying. I had to be prescribed diazepam! I feel worse as each day goes by, dont think i can do this for much longer if this carries on.... i really want to get off this drug but i dont know how long the withdrawal will last and when ill start to feel better, does anyone have any ideas??
I feel like im in living hell at the moment...i have been feeling so bad that ive been house bound now since i started this regeime, i just need to know when its goin to end.
13 likes, 509 replies
geraldine49407
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geraldine49407
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Teri1968
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I hope like others my sex drive returns !! and I lose weight!
Reading this has given me hope, I know it isnt going to be easy, but am determined to crack it!
sally104
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It's quite interesting what you've been saying about GP' s not recognizing the withdrawal problems. I take 325xl along with Carbamazopine as a mood stabiliser and Quetiapine, along with a load of non psych meds. A few weeks ago I went through a crisis, and in my wisdom decided I didn't need any meds at all so stopped everything. Come the start of day 3, I was on the sofa, unaware of much going on, in agony, shaking like a leaf and in a mess. My husband had become very worried by now, as had my GP who appeared (yes a home visit), and basically gave me a choice take them or be sectioned! She said that stopping my meds was dangerous, and in particular the Venlafaxine!
When I was back to being a bit more rational she said that if I really wanted to come off them whilst she didn't recommend it at the moment, she would help me but that when I got down to the 37.5 mg, she would move me across to the non xl, and reduce it slowly from there. She also told me that out of all the meds I should never just stop the venlafaxine as the withdrawal symptoms could be dangerous to me (maybe because I have had some strokes, have hypertension etc?)
She is clearly aware of problems.......
MissyJo
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I was put on medication for panic attacks when I was 25. At the time I was so relieved to have something stop the attacks and let me lead a normal life again that I didn't question it. Unfortunately now it's 7 years later and I'm on 450mg per day Venlafaxine (prescribed more than the legal recommended daily dose. Supposedly 375mg is the max a person should have per day. I am not a unique or scary case. Why did my doctors get me on this dose and this medication?) Apart from making me crave chocolate, gain weight and feel fatigued constantly, i feel like im not me anymore. I've tried to reduce before but the withdrawal is something I don't even have words to describe. The brain zaps, what felt like Chronic Fatigue, the crying, the despair, arhg... I'm reducing again by a smaller dose this time and doing it much slower. But even reducing by 37.5mg ONE day in the week (not everyday- just 1 day!) and I wake up drenched in sweat and am incredibly tired. It overwhelms me how long it will take.
I don't know how this happened to me. When you explain how you feel to doctors they just try to up your medication! I used to be a fit, healthy, social, happy, attractive 24 year old. I'll be 33 this year and none of the things I was at 24. I've gone up 3 dress sizes, my skin is terrible, I'm in an unhappy relationship and not sure if it's my fault (I don't think it is to be honest). My self esteem and energy levels mean I don't want to go out much anymore. This isn't what I thought my life would be.
I think Molly is onto someone regarding the manufacturers. I'd join you. This medication and the doctors I stupidly trusted have got me to a place I am struggling to get out of. I was pregnant a few years ago but sadly i.knew straight away I couldn't have a baby develop normally with the dose I was on. I tried to come off the medication at the time but the withdrawal was probably doing even more damage. . I thought I was going to die. At the time I would pray to die in my sleep.
I would really like to have a baby and a family in the future but would never have a child while my mind, body and brain are as they are now.
If I had of known about the withdrawal from this I never would have taken it.
There's no way doctors know about this as they wouldn't prescribe it so readily if they did.
Has anyone else ever been on 450mg a day and successfully come off?
gingerboy
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I wanted to come off Ven as I hated the side effects - nausea being the main one. I'm emetophobic (fear of vomiting) so that side effect just made me more anxious in case I was sick!
GP prescribed me Sertraline but I had to come off Ven first. I went from 150mg to 75mg and stayed at this dose for 5 days, then down to 37.5mg. I felt more 'alive' as soon as I came down to this dose and apart from the brain zaps and bizarre dreams, didn't really have bad withdrawals. With this clear mind I've decided to try and 'fly solo' if I can (and not start on Sertraline).
After 5 days at 37.5, I cut the tablets in half and just had that daily, for another 5 days. Friday 17th I took nothing. I've had the sweating, shivering, trembling, dizzy, brain fog. Last night I was awake till 3am, then again from 5.15 till 6am when I took a Phenergan (for the sedative effect). Woke again at 840 and have been awake since.
I have felt tearful (at the most ridiculous things) today, more than I have been through all the years on AD's. When my sister died, although I felt sad, I couldn't cry - that's just NOT normal is it?
Reading others' horrendous experiences of coming off, I think I'm having it fairly easy (so far......)
Good luck to everyone who is going through their own journey.
MissyJo
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It is a site to help people cope with withdrawals from coming off their medication. I was only made aware of the site yesterday so I can't vouch for it just yet but from what I've read so far I have help it can help me.
I recently read 'Potatoes Not Prozac' and I fully recommend it to all. ESPECIALLY if you are someone who craves sugar. I joined the forum of people slowly tapering off sugar and they led me to the website with the program to support coming off strong medications.
I'm learning a lot at the moment and I have found lots of support from the above mentioned. The other book I've also read recently is called 'A Dose of Sanity'. It explains why all the doctors (wrongly) put us on these medications. I wish I'd known all this 8 years ago but better late than never.
helen44474
Posted
Iv been taking 225mg a day for 2 years since the birth of my son and am now on day 2 of no venlafaxine. This afternoon I starting getting the withdrawal which I can only describe as feeling very wobbly on my feet, hot swats and racing heart beat.... (Please excuse the spelling) this has slowly got worse as the evening has gone on..... I didn't suffer any sort of things when reducing the dosage only a little tearful now and then and a little short tempered.....
How long will this last? Is there anything I can do that will stop or ease this with out going back to see the GP.
I really want to stop taking this and feel foolish for having these problems from stopping.
X
john15817
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Seriously. Read everyone's post. You cannot get free of this awful drug by simply "cutting back" on how many or how frequently you take a dose -- unless, of course, you want to endure hell for months.
The only way off of this crap is a super-gradual dosage reduction over a VERY long time. There is no shortcut. None.
I'm off this crap now and had zero withdrawal symptoms. None. Nothing. Read what I wrote above. It takes more than a year. Get over it. Just do it.
If you are in a part of the world where you cannot acquire capsules, you'll have to find a compounding pharmacist to crush up the tablets and load the powder into reduced dosage capsules. If you are in the capsule world, it is really simple to weigh out the little drug pellets and follow my directions.
Good luck.
judy1959
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gingerboy
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Emotionally however, I'm blubbing at anything. My poor boss had me wailing down the phone at him this morning. He's really supportive and said it's like the 'well' where my emotions have been kept for years has had the lid lifted off!
I'm so glad to be off them and clearly very lucky that it hasn't taken me a year, like it has for some people. x
Be_Mindful
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I'm new to this site and have been very interested to hear what you all have to say. Learning to accept having a mental health issue can be very tough, making you 'different' to other people. The positive side to that, for me anyway, is learning to embrace my difference, love the quirkiness that is 'me', whilst accepting that I also need to take medication to tone me down, even me out and lift me up!
I was diagnosed Bipolar seventeen years ago having previously (all my adult life) suffered from and been medicated for severe depression and anxiety states. I have been taking 800mg Lithium and 300mg Venlafaxine for the past sixteen years. I have continued to have depressive episodes but these have been a lot less disabling than previously but now, since giving up work 2.5 years ago I have not had a single episode and am pretty balanced.
I now feel I want to come off the Venlafaxine as I feel I no longer need it and am heartily sick of being fat and not being able to keep weight off when I lose it, no matter how hard I try! I also want to know 'what I'm like' without this drug as it's so long since I was unmedicated I'm not sure 'who' I am anymore. So with my GP's support I am going to come off Venlafaxine but stay on the Lithium and see how it goes. From reading these forum posts it seems that most people expect to come off Venlafaxine very quickly. I know I cannot do that as even small changes in dosage of my meds has a substantial effect on me! So far I started by reducing my dose by a quarter, ie 75mg for one month. I did have discontinuation symptoms for about 2 weeks, beginning a few days after I started the reduction but only mild. These were not sleeping as well, sweats mostly during the night and waking in the middle of the night with a bad headache that didn't respond to paracetamol and was still there in the morning. So far so good! After a month of that I have made another reduction, only 37.5mg less this time but it still means I'm taking almost half the dose of Venlafaxine I was originally on. I have been doing this for just a week now and so far the side effects, again mild, are aching joints and some sleeplessness/headaches. I will continue like this for two months before I attempt to cut down again.
If successfull it will probably take me at least eight months to fully come off but I consider that time very well spent if it means my side effects are minimal and I don't get catapulted into a depression! After all I've been on the stuff for 16 years, what's one more?
Slow and steady wins the race!! x
naj30644
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naj30644
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pam_03131
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