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New here, looking for others who might have the same issue or can lead me in the right direction. I don't believe I have vertigo as I don't experience the spinning commonly associated with it. What has been happening to me is -- I will begin to get this feeling as if my eyes are not focussing together, will then experience double vision (images will appear double up and down not side by side). Sometimes if I tilt my head I can adjust the vision if it has not gotten too bad. The biggest issue associated with this is my balance issue. I cannot walk, balance is totally gone. I must hold on to the furniture or walls in order to move. If I go to sit down I might totally miss the sit. If I try to pick something up I cannot "find" it. I first noticed this occurring at times when I felt as if my eyes were tired from being on the computer or sewing (I do wear reading glasses during these activities). It has however happened once upon waking up and another time when I was in Paris at the Louvre. That was a very hot day, with large crowds and I attributed it to the heat, the crowds and jet lag. I cannot figure out why I would wake up with it if it is an eye problem. I do see a neurologist and take anti seizure medication. I have told him of this problem, even went to his office when it was occurring but he had no explanation for it. After another visit he decided it could possibly be a side effect of the anti-seizure medicine. We dropped the dosage and the occurences stopped for a time, but still continue. I have been taking this medication for a good 20 years with no side effects so that explanation bothers me, since it still happens even though the dosage has been changed. I have been to the eye doctor as I first believed this to be a vision problem as I feel my eyes are not "focusing together".
This does not happen all the time, every couple of months maybe. When it does happen it is very frightening, especially when I am out of the home.
Has anyone experienced any such issues? Received a diagnosis?
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