Vertigo on and off, every 1-2 months, last night woke up spinning

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I'm at a loss of what to do. I had my very first bout of vertigo last summer (2017), while brushing my hair and turning my head, and it was 6 months before it started up again. Since then I have had it one or two days in a row every 1 to 2 months. My doctor diagnosed it as bppv but I worry that it's something else. Even if that is what it is, the constant fear around spinning at any time is almost debilitating.

I woke up to it in the middle of the night last night, and had it again a few minutes later after it has stopped. That's the first time that has happened. I also suffer from an extreme fear of throwing up, and the nausea is torture.

I'm not sure what I'm really looking for - I have obviously been all over the internet, and it partially helps to hear others' experiences a d partially makes me feel overwhelmed and hopeless. In the worst of it last hight I felt like my life was over. I wasn't able to work today, and I know that my anxiety around the vertigo is only adding to my suffering, and yet I don't k ow how to just give into it.

I was prescribed some medication for nausea, but I didn't want to add anything new to my meds list and I thought that doing the eply maneuver was helping enough. Last night's episode has me terrified though.

Any words of advice, encouragement, hope, would be much appreciated.

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6 Replies

  • Posted

    Hi Christinaanne,

    Sorry to hear about your bouts of Vertigo. Have looked into the Foster Maneuver? It's different type of maneuver but maybe that can help. Have you had blood work, an MRI or any other diagnostics procedures done? Are there any other symptoms like chronic disequilibrium or imbalance sensations? Hopefully your issues can get resolved sooner rather than later.

    I've been dealing with constant disequilibrium (not vertigo) for 5 months now and can attest to how debilitating this can be. The one good thing about online discussion forums like these is that many people can fire off ideas and suggestions for things a person on their own might not have thought about or have even known to look for.

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  • Posted

    MRI to rule out bad stuff first. Then alot of testing. Don't try to do any meneuvers you see on the web. If you do them wrong you can make it alot worse. If it's bppv it shouldn't last as long as it has. Reg docs and even alot of ENTs are not trained to deal with inner ear disorders or vestibular system. You may need to see a neurotologist. ( Not neurologist) . A neurotologist specialises in these types of issues. I been threw it a few times. Been suffering for 12 years. Mine ended up being menieres disease. It's been hell.

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  • Posted

    I know how bad it is sorry to hear it. Under this category go to sophie4104 and read my reply to her.
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  • Posted

    I know how you feel. You need to keep researching. I recommend a website called vestibular.org it is devoted to vestibular / balance issues and they cover quite a variety of causes and symptoms. I was finally diagnosed with an inner ear growth that is now near my brain and requiring surgery and I can honestly say without my own research and that website I would still be undiagnosed.

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    • Posted

      I can't stand I feel off balance, vision has become blurr, I feel my legs jammed and tired and weak stiff neck, eyes and head took much of anxiety when I lye still and breath I feel I have I am floating in air and blood is not flowing in my legs and then my legs suddenly feel normal like someone put life in it and becomes tired

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  • Posted

    Just to rule things out , you don't seem to have what me and Whaffalobill have ,Meniere disease Vertigo , that would last between 2 and 4 hours ,profuse sweating , dry mouth , spinning ,nausea etc...

    It's not your case ,

    Hope you get better soon

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