Vertigo that lasts for a week--please help!

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I am praying that someone out there can help me or will at least tell me they have had similar symptoms. I've had increasing vertigo episodes now for over 15 years. Had a concussion in '07 from falling and hitting the back of my head. The vertigo started before that fall though. Every time it's the same drill--wake up feeling dizzy with a slight pinch in my neck like I've slept wrong followed by dizziness and then full blown vertigo for at least 4-5 days. Day 2 is always the worst. I've seen a PCP, PT, Neurologist, ENT, Balance Specialist, Chiropractor and the only thing that has come close to relieving the symptoms is the chiropractor. He tells me that my right side (always the right side) of my neck is moved..the bone below my ear. He adjusts and it feels better until the next day. I've seen him every day this week, sometimes twice a day. It seems to have to run it's course. I've had an MRI, CT Scan, and numerous ear/hearing/eye tests performed. I've had the Epley Manuever done and one time it did help. So I would assume that episode was BPPV. My neurologist dxd me with Vestibular Migraines as I matched all 6 characteristics of that. I do know I have migraine issues but no headache. For example I have issues with my eyes if I look at bright lights...orbs, light spots in eyes, dizziness afterwards. The neurologist put me on magnesium for the migraines as some study showed that could be helpful. I need to know if anyone else out there has the same symptoms. I'm at the tail end of an episode right now that started on Sunday. This is now Friday. I slept in a hotel with a thick, fluffy pillow and woke up on Sunday with a cramp in my right side of my neck. Boom....on Monday I woke up with vertigo. I made the mistake of not taking my own pillow to the hotel. I'm afraid to travel now as it ruins a week of my life. Please help me!

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  • Posted

    Hi Becky43723,

    I had the same symptoms for nearly 3 years now, I had so many test,MRI and blood test all normal..

    just recently seen Neurologist which diagnosed me with vestibular maigraine which affected my brain and caused PPPD

    I know is hard at first those symptoms affected me of doing my daily routine

    but now I force myself of doing things and I won't let it stop me to live.

    so you need to see a good neurologist or ENT who can run 3 hours test in dark room which they put cold and warm water in the ears and they control your eyes in the computer so they can found out exactly the problem that kind of condition it won't show on MRI

    best of luck

    sab

  • Posted

    Hi Becky43723,

    I had the same symptoms for nearly 3 years now, I had so many test,MRI and blood test all normal..

    just recently seen Neurologist which diagnosed me with vestibular maigraine which affected my brain and caused PPPD

    I know is hard at first those symptoms affected me of doing my daily routine

    but now I force myself of doing things and I won't let it stop me to live.

    so you need to see a good neurologist or ENT who can run 3 hours test in dark room which they put cold and warm water in the ears and they control your eyes in the computer so they can found out exactly the problem that kind of condition it won't show on MRI

    best of luck

    sab

    • Posted

      Thank you so much sab65033 for your advice and for sharing your story. It helps so much to hear from other folks going through the same thing. It's true when you have something that doesn't show on the outside, folks tend to not think there's anything really wrong. I'll have to look up PPPD.

  • Posted

    Hi Becky43723,

    I had the same symptoms for nearly 3 years now, I had so many test,MRI and blood test all normal..

    just recently seen Neurologist which diagnosed me with vestibular maigraine which affected my brain and caused PPPD

    I know is hard at first those symptoms affected me of doing my daily routine

    but now I force myself of doing things and I won't let it stop me to live.

    so you need to see a good neurologist or ENT who can run 3 hours test in dark room which they put cold and warm water in the ears and they control your eyes in the computer so they can found out exactly the problem that kind of condition it won't show on MRI

    best of luck

    sab

  • Posted

    I guess something I've forgotten to mention is that I had to DX myself with VM. I don't even know for sure that that is the proper DX but I got online and did research and my neurologist said she "concurred with my findings". Ha! The balance and hearing specialist I saw also said he had to agree with my findings. So why did I pay him nearly $400??? He did some testing but not the caloric test. I'm so thankful to have found this forum. I can't thank you all enough.

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