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I was diagnosed a couple of years ago with HS, though I know I've had it since I was in my 20s. (I'm 52 now.) I've had once successful surgery on my left armpit with a flap closure. Scar doesn't look great, but no HS there anymore. Saw my plastic surgeon last week who seems hesitant to do more surgery until I see a wound care specialist and an infectious disease specialist. He thinks the ID specialist can maybe suggest a better antibiotic to calm down the inflammation before surgery, and since he's not going to do a flap closure this time (long story), we wants me to see the WC specialist as a consultation prior to surgery to talk about the open wound healing processs. To complicate things, I have type-II diabetes, which makes healing more difficult, apparently even when it's under control, like mine is. I'm just so frustrated, tired of waiting, in pain. Oh yeah, pain. The last time I saw my dermatologist who diagnosed the HS and referred me to the plastic surgeon, I asked her about pain control. She simply smiled at me and said, "I don't prescribe pain medication. See your internist." I've got active advanced HS in my right underarm now, in my right groin, both perianal clefts, and a small but weeping spot on my upper right thigh. I'm just so over all this, but I know there are no quick fixes. I feel like I've lost my life. The only time I'm moderately comfortable is when I'm in my reclining chair or in bed. Not a way to live a life. I currently take the oral antibiotic minocycline and topical clindamycin and wash with a benzole peroxide cleanser. None of which seem to give me any relief. I guess I'm just reaching out because I'm hoping someone else out there understands my anger and frustration...and fear. My husband is very sympathetic, but he really doesn't understand. How can he when he doesn't have HS? I'm just not in a very good place right now.
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