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Very restricted food list and nutrition

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JenniePoobah
JenniePoobah

Hi! I have oral allergy syndrome. It's taken most plant based food off the table. They suspect celiac's also. Currently I'm eating dairy, meat of all kinds, gluten free bread products, cucumber, lettuce, blueberries,potatoes, corn, and basmati or jasmine rice. Also coke zero and white monster. Other carbonated products trigger allergies or swelling.

No food coloring.

No other fruit or vegetables.

No spices except salt.

I'm Vit d deficient (chronic), recently iron dropped and then hematocrit, hemoglobin and.. hm another one. So, anemic. (No menses for over two years, but had had two normal ones). Potassium, calcium, sodium, b12 all look good. Don't know about folate absorption, because I have the a1298c double mutation.

Had to stop oral lmetylfolate and Vit d due to allergies/angioedema.

This doesn't look like optimal nutrition, but I can't take oral vitamins either. I recently found Vit d skin patches I'm going to try. Any other suggestions?

Anyone else in this position?

Thanks! Jen

0 likes, 12 replies

12 Replies

  • jane54391
    jane54391 JenniePoobah

    Posted

    Can they not use injectable d ?

    I was tested for celiac,luckily negative.

    Sounds as though you are having a really bad time. I'm sorry !

    I believe chronic stress levels can block absorbtion though whilst this theory seems to hold water in the States it doesn't seem to be accepted in the UK

    • JenniePoobah
      JenniePoobah jane54391

      Posted

      I am trying patches before injection. I'd hate to get a huge amount and have anaphylaxis. I can see if smaller levels in a non oral form cause a contact allergy. If not, then small injection first. I will likely always need large supplementation doses, because as you saw from my post, I got only a small uptick over 5 months using 5000 iu . I don't hold it regardless of how much I am given, despite a lot of skin on sun, fish, etc.

      I have talked to others with similar immune problems as mine. It seems to go hand-in-hand with autoimmune dysfunction.

      I have no lab correlation with excessive stress (such as cortisol, etc). It seems to just be a byproduct of the underlying dysfunction

      Jen

    • jane54391
      jane54391 JenniePoobah

      Posted

      Yes and no. All ok with d atm. Mri clear. Endoscopy discovered polyps and will repeat in 3yrs.

      B9 good now. I honestly believe mine was due to cortisol blocking after 2yrs chronic stress. Was really relieved when mri was clear as you can imagine.

      I too have an auto immune problem found 19yrs ago but only seemed to cause problems in pregnancy.

      If you can cope with patches i do wish you luck. My apologies for having come over it what must have read as confrontational !

      Please let me know how you progress

      Jane

    • JenniePoobah
      JenniePoobah jane54391

      Posted

      Just keep an eye out. Autoimmune problems are known to frolicking together (statistically speaking, for example, having hashimotos makes you much more likely to slowly develop any of seven common autoimmune problems over the rest of your life). I wish you all the best and hope the gut problems and polyps stay gone gone gone!! 😁😁😁
  • Jaybelle
    Jaybelle JenniePoobah

    Posted

    Jenny, very few people with oral allergy syndrome are unable to eat cooked fruits and vegetables as it denatures the protein causing the allergic reaction. My son has OAS and we have found that a very light cooking is enough to make all fruit and veg safe. Have you tried this? It could substantially widen your diet. 

    All best wishes. 

    :-)

    • JenniePoobah
      JenniePoobah Jaybelle

      Posted

      Yes. Unfortunately. I have tried being a good little eater most of my years, following the food pyramid and getting sicker and sicker. Most recently they did a good challenge with hamburgers and a different variety of greenery in each one. (Double blind test). Face swelling. Throat swelling, gut swelling, asthma... it was awesome. But that's me. I'ma meatatarian.

    • Jaybelle
      Jaybelle JenniePoobah

      Posted

      What a bummer. You must have a much more serious reaction to the tree pollens causing cross sensitization with food proteins than most. If you have a specific trigger (for most people it's birch pollen), you might be considered a candidate for specific pollen immunotherapy that could possibly dampen down the hyped-up immune response you are having to everything. 

    • JenniePoobah
      JenniePoobah Jaybelle

      Posted

      I'm allergic to.. I think around a hundred trees, pollens, grasses, molds..

      Crazy, huh?

  • Actiquser
    Actiquser JenniePoobah

    Posted

    Hi Jennie

    Poor you, your diet is dire.

    You can get Vit D injections( although my Gp said you could not.) Also try to stay in the sun 15 minutes a day if possible for Vit D from sunlight exposure.

    I was given Vit D injections monthly by my consultany gastroenterologist along with my Vit B12 injections monthly when I had total parental nutrition which is intravenous feeding for 3 years. I had this for total obstruction of my GI tract resolved by removing most of my small bowel. I have a gluten free, lactose free, caffine free and low fat diet.

    Sorry I'm not much help other than Vitamins may be given by injection if prescribed by a Dr, or absorb it from the sun if possible.

    • JenniePoobah
      JenniePoobah Actiquser

      Posted

      Wow. Sounds like you have been through a lot. I will check into the injections. Maybe I could give them to myself. I used to give myself b12 injections. I appreciate the suggestion!

      Good luck on your journey.

      Jen

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