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Vesibular neauritis

Posted , 7 users are following.

tony01764
tony01764

Hi i wonder if anyone could help me in 2014 i was walking and all of a sudden i felt dizzy and was walking to the side never experienced anything like that i panicked so i went t a&E explained to doctor my symthtoms he checked my ears and said the right ear was red raw inside so he prescribed me with antibiotic eardrops and antidizziness tabets.1 week later no change still felt terrable work was impossable to do a full day.anyway this all started in february 2014 between february and july 2014 i had alot of time off went to see my gp and refered me to a ent specialist who done a hearing test and said it was fine and ruled out meniers and diagnosed me with vesibular neauritis and that was it.its now 2017 and my symthtoms are still present no worse but not alot bettet.all i can say this has took over my life and to be honest noone believes me so i found this site and thought i may be able to talk to people about it.thanks for reading

0 likes, 11 replies

11 Replies

  • helen91488
    helen91488 tony01764

    Posted

    Hi I know how you feel. My symptoms started December 2015, all tests scans etc VN diagnosed paid for vestibular therapy and gradually life has returned to much better. 

    Some weeks it's a distant memory but then it rears its head for a short while again . Never as bad as in the beginning but yep it's still there. Some doctors will say anxiety causes it but I say IT causes the worry and anxiety. I believe you because I know exactly how you are feeling 

    take care

    • tony01764
      tony01764 helen91488

      Posted

      Hi there yeh some days i think im ok but its never as bad as the beginig.it just worries me what an mri wiuld show
    • helen91488
      helen91488 tony01764

      Posted

      I really wouldn't worry too much. Easier said than done I know. If you had anything more sinister you would have had further symptoms by now. I am a nurse and I still worried myself silly.my GP did anMRI because I pushed for one and it ruled out any nasties. Hearing test was fine so no Menieres. As you said yourself the symptoms aren't as bad as at beginning but if you are like me as soon as I have a slightly off day I worry it will come back  then the worry makes me worse etc etc.

      take care

       

  • eleftherio33095
    eleftherio33095 tony01764

    Posted

    When there is a suspicion of vestibular neuritis initially, and there is no improvement beyond 6 months, then central causes need to be considered.  I recommend a brain MRI.  I am sorry to be straight here, but as you are having the same symptoms for 3 years this needs to be considered.

    Eleftherios S. Papathanasiou, PhD, FEAN

    Clinical Neurophysiologist

    Fellow of the European Academy of Neurology

    • saccio65311
      saccio65311 eleftherio33095

      Posted

      Most of them suffering from 5-6 years and they did MRIs also but results negative. May I know why you suggested only him to do MRI
    • helen91488
      helen91488 eleftherio33095

      Posted

      Hi I'm a little confused. MRI done appointments with specialist otologists , they say VN can return at any point , probably not as bad as in the beginnning. Are you saying this is not the case? 

       

  • lily08036
    lily08036 tony01764

    Posted

    Hi Tony

    I've been dealing with constant lightheadedness off balance head pressure headaches ; naseousness. I've had MRIs seen ENT blood work hearing test equilibrium test and everything ok just saw third neurologist and he said vestibular disorder. He gave me excersices to do at home and prescribed Zoloft. It hasn't been easy ..i woke up today and I was dizzy..i got panicky and anxiety kicked in..fast heart ..you name it. I had to tell myself I'm ok relax . I calmed down but like I said I always feel this swaying ..motion sickness ..unsteady on my head . It's hard .. I push myself to work but believe me I want to stay home and be in bed ..but I need to work . I know the Zoloft is probably making me feel even more dizzy .. I know that's one of side effects ..but I've read to hang in there it gets better ...praying it does

  • melanie61979
    melanie61979 tony01764

    Posted

    What are your symptoms ? Are they constant or episodes? I have VN. I have had a MRI of head and neck and awaiting a appointment with ENT. I have had mine for 2 months. My symptoms are constant. Blurred vision when I look down and up. Headache everyday. Trouble with balance in the dark. Some ear pain but no hearing loss.horrible fatigue. Going to stores and resteraunts are a Nono.
  • josh30539
    josh30539 tony01764

    Posted

    Have you been asked to do or tried doing any Vestibular Rehabilitation Therapy? I've had VN for 18 months now and i started doing them about 2 months ago and so far feels like it is helping with my symptoms, which are same as yours. 

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