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10 years ago my ENT diagnosed me with vestibular migraine. There is no pain, only 24 hours that begins with (what i call) violent vertigo, then continues with nausea and dizziness. Driving is impossible during vertigo and difficult with the rest. He put me on verapamil and my attacks went from every other day declining until eventually I weny into remission.
Yesterday I had the worst vertigo I can remember for probably the last 5 years. I'm so heartbroken, i can't describe it any other way. I'm dizzy and sick today and want to curl up and hide. I don't want it to be back. No one I know understands what i go through. My husband tries, but he just knows the words I use, not the feelings that come with it. My PCP has no experience with this and just renews my script because I tell her it helps.
Does anyone out there have Vestibular Migraines or MAV? The internet says only 1% of the population is diagnosed with this. Will I ever meet someone who understands?
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