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Vestibular migraine dizziness

Posted , 6 users are following.

lynn260
lynn260

I have. One off an SSRI 12 days ago. I felt spaced out on the med and I feel dizzy with tinnitus and sleep disturbance. I also have anxiety.

Doctors say I have anxiety but cannot explain why my head felt spaced out on the med and why I am dizzy now. I do not know whether I am suffering from vestibular migraine or only anxiety. If anyone has vestibular migraine I would appreciate it if you could describe your symptoms. Does it affect sleep? Are you permanently dizzy? Do you suffer anxiety? Have you tinnitus?

I just don’t want to go on meds again if Drs still can’t give me a diagnosis. Every dr resorts to ssris but I am not depressed and the anxiety is because I have migraine like symptoms which seem constant.

Many thanks 

0 likes, 14 replies

14 Replies

  • postaldogg
    postaldogg lynn260

    Posted

    I do. I also have anxiety. I was felling dizzy for a while before being diagnosed. Now I will have some days with slight lightheadedness, usually ha's when I know a migraine is coming. I have always had sleep problems. I am on 20 mg amitriptyline and 400mg magnesium and 200 mg B2. I was getting a migraine once to twice a week. I now get one maybe every 3 weeks or so and they don't seem so extreme. I am also sleeping better

  • karen28970
    karen28970 lynn260

    Posted

    They are ruff & SSRIs don’t help. Try to get to a real headache clinic. 

    I’ve been through it all. I have anxiety & dizziness, but it’s migraine related. 

    After so many drugs, Triptans, antidepressants, holistic, acupuncture, massage, anticonvulsants, muscle relaxers, NSAIDS, narcotics, Botox,  Topramax, biofeedback, .......... I’m now on Memantine (dementia med) with Magnesium & CoQ10.  It’s changed my brain. I still have an old muscle relaxant (Norflex ER) & Fiorecet at times with some anxiety meds. But it took 30 years to get here. Regular Drs & Neurologists just suck. They care but they have no new ideas. It took a designated headache clinic & a psychiatrist to get help. My migraines made me dizzy, sleepy (with no drugs on board) & stroke symptoms. Now they are old fashioned & treatable. Fight, keep seeking for help, & don’t accept less

    • lynn260
      lynn260 karen28970

      Posted

      Hi Karen

      That is very helpful. Can I ask your age? I am 58. I have come off the Sertraline and my symptoms are worse. Perhaps it is withdrawal. I also believe this is vestibular related. I will look into a headache clinic. 

      Are your symptoms now gone? 

      I have awful tinnitus which came on after taking so many meds.

      Lynn x

    • karen28970
      karen28970 lynn260

      Posted

      I’m 52. My dizziness is gone. A lot of my weird pre- migraine have gone. Now they are more classic.  Withdrawal is common, especially if you stopped it suddenly. 

      Chronic migraines are a life time of change & struggles. Mine have evolved & my experiences with Drs have been great & awful. I get so nervous before each visit. So it’s a fight. 

      I wish you the best 

  • Keira8488
    Keira8488 lynn260

    Posted

    I feel exactly the same. I've been fuzzy dizzy headed since March 2017 and my doctor keeps blaming it on anxiety now I can't even get passed them to see a specialist. I'm so fed up with feeling like this 24/7 it's so scary. what are your symptoms? I feel fuzzy dizzy headed it's a weird feeling sometimes I have a stroke like feeling around my left eye. I get shaky and feel sick. and sometimes my eyes go really heavy x

    • postaldogg
      postaldogg Keira8488

      Posted

      I had the same fuzzy headed feeling which has gotten better now. But I also had the heavy eyes and my face around my cheeks would feel sort of numb. Neurologist said when you have a migraine there are nerves that go near your cheeks that will cause this feeling.As I said I take 20 mg amitriptyline  400mg magnesium and 200mg B2 prescribed by my neurologist. Things have gotten much better although the anxiety still bothers me.
    • lynn260
      lynn260 Keira8488

      Posted

      Keira

      I was constantly told I had anxiety but I slso had sleep disruption and trembling.

      I am off Sertraline but the symptoms persist and it looks very much like a vestibular problem.  Drs don’t seem to pick this up but you need to see a specialist. I am seeing someone soon to try to get to the bottom of my problems.

    • postaldogg
      postaldogg mrs_susan74280

      Posted

      Have you seen a neurologist? I also went to a balance center that checks for vestibular problems.
    • Keira8488
      Keira8488 lynn260

      Posted

      my doctor won't even refer me. over the last 18 months I've been trying she says no and that I need to go private. I've never felt so ill in all my life x

    • postaldogg
      postaldogg Keira8488

      Posted

      Are you here in the U.S. ? This last bout I had with this all started with me waking up with severe vertigo. Once the bad spins were gone I was left with the fuzzy head, trouble going  into busy places like grocery stores because eyes and ears are tied together(vestibular system). This is the third time this has happened to me and the first 2 times the only thing that took care of it was passage of time. 1 year each time.This time I found the right doctor and it helped  in a shorter time period.Will your primary doctor try you on some amitriptyline?
  • mrs_susan74280
    mrs_susan74280 lynn260

    Posted

    I also get pain in right ear and right eye, had a mri scan shown nothing wrong,
    • lynn260
      lynn260 mrs_susan74280

      Posted

      You need to see someone who deals in ENT issues focusing on vestibular problems. Where are you based?
  • karen28970
    karen28970 lynn260

    Posted

    True headache clinics can screen you for the weird migraines. Also there are a lot of studies out there to try to get into. 

    Anxiety is a proven part of migraines. Most providers only know the classic migraine syndrome. Most migraine suffers know more than their doctors. I’ve gotten really frustrated with some migraines. The American migraine association has lists of doctors that specialize in migraines. But just keep fighting. 

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