Posted , 7 users are following.
i saw a specialist for Meniere's today and the eye test &.hearing test did not point to menieres as previously thought. They said possible vestibular migraines without pain or a brain tumor. I've been spacey/dizzy for 3 months now. some days worse than others. has anyone else ever been told this?
0 likes, 8 replies
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JGaitan501 tonia95847
Posted
i have menieres but i also get the dizzy/spacey feeling. i have hearing loss, vertigo attacks, and tinnitus so i have all the classic menieres symptoms. i didnt start getting the spacey feeling until last year though. I have had an mri to rule out a brain tumor.
pat69697 JGaitan501
Posted
i have menieres too. awful illness. tinnitus hearing loss and horrible vertigo. i do things very slowly now. had MRI so no tumour.
DizzyLizzy68 tonia95847
Posted
I had Menieres ruled out with a VNG/Caloric test on two occasions, 3 yrs apart. I have similar symptoms, and was also told vestibular migraine. I was also found to have severe arthritis and pinched nerve in my neck, which seems to have contributed to or caused my issues.
yolanda29073 tonia95847
Posted
hi TONIA! i have been diagnosed with VESTIBULAR MIGRAINES on october 2017 i also thought i had menieres due to the similar symptons. i take Amytriptalin 10mg 1x aday to prevent the migraines and betahistine 3x a day for the tinitus, vertigo and nausea. A MRI ruled out a brain tumour and my hearing test was also negative. The ENT specialist gave me a whole list of things to avoid (chocolate, any type) and things that i should have less of which i divided into: salt, sugar, environment (light, smells, heat) and hormones(being on the pill, or every time you're on your period). By following this new lifestyle plus medication, you will start to feel a lot better. you will still have bad days, but you'll still be able to live your life as normal as possible. and before i forget, stay away from anything that may cause you stress.
tonia95847 yolanda29073
Posted
thank you! I've had on and off ringing in my ears and dizzy for 3 months. some days are worse than others. I normally get this when I get sick that lasts a few weeks but never had it come on for no reason. I was about a month into nursing school when it hit and won't go away.
tonia95847
Posted
I forgot to mention, I have no head pain!
yolanda29073 tonia95847
Posted
i should have mentioned that i also had no headaches when it first started. i was just dizzy all the time, had to miss a lot of work and other activities because of it. Later on when i once again went to see my Gp she explained to me that i might suffer with migraines due to some of my symptoms (phantom smell, flashes of light and an aura). only when i mentioned the constant dizziness, she then sent me to see an audiologist who then gave me some info on vestibular disorders.
keep going back to see your GP until you have a plan/medication that works for you, only then will you start to feel better. in the meantime, get to know your triggers and avoid them as much as possible. come to forum to speak to others, research your symptons and things you can do to minimize your suffering. relax as much as you can, listen to music, read a book, just to take your mind of the constant worry that you're going to get worse.
tonia95847 yolanda29073
Posted
thank you so much! this helps me tremendously!