Vestibular migraines chat

Posted , 5 users are following.

Hi, really keen to hear from anybody who has or is suffering from vestibular migraines. I'm really struggling at the minute with the diagnosis because some of my symptoms are very odd. I'm being fobbed off with anxiety too which I don't think is the case. I'd just be really grateful to hear from people in the same boat because at the minute I feel like I'm in the boar alone and rapidly sinking;

Thanks guys

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5 Replies

  • Posted

    Looking for your symptoms really just as a comparison to mine :-(
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  • Posted

    Go to face book and do a search for vestibular migraines to find groups of people like us. They will help you
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  • Posted

    I live in Los Angeles and just spent 10 days as an inpatient at Cedars Sinai for vestibular neuritis with excruciating headaches. The headaches are what kept me hospitalized for so long in addition to the zero balance and vomit inducing vertigo. But so many Drs said they couldn't understand the headaches. I know now these are VMs but at the hospital no one mentioned. I've lost 85% of my hearing on the left since sept 17th and while my headaches are lessening they are still persistent and debilitating. I had two Lumber Punctures and 4 MRIs while I was there. It's been a lot in 3 weeks to say the least. I do have several non specific autoimmune issues plus Hashimoto's so this may be an autoimmune flare. I've started tympanic steroid injections now to try and recover hearing while taking a high dose prednisone course, Percocet, Xanax and Zofran. Ugh.

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  • Posted

    Hi what are your symptoms? Anxiety can play a part in how your feeling which also can make it worse
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  • Posted

    Hi there.   Yes I have vestibular migraines.....there are loads of wierd symptoms....one of which is anxiety.....something that is triggered because of the brains reaction to being out of balance.   I was pretty bad for a while but once i went on meds have been much much better, so keep your chine up
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