1. Community
  2. Ears, nose, throat and mouth
  3. Vertigo and Dizziness

Vestibular migraines chat

Posted , 6 users are following.

gem1971
gem1971

Hi, really keen to hear from anybody who has or is suffering from vestibular migraines. I'm really struggling at the minute with the diagnosis because some of my symptoms are very odd. I'm being fobbed off with anxiety too which I don't think is the case. I'd just be really grateful to hear from people in the same boat because at the minute I feel like I'm in the boar alone and rapidly sinking;

Thanks guys

0 likes, 5 replies

5 Replies

  • gem1971
    gem1971

    Posted

    Looking for your symptoms really just as a comparison to mine :-(
  • rocksolid
    rocksolid gem1971

    Posted

    Go to face book and do a search for vestibular migraines to find groups of people like us. They will help you
  • christina513
    christina513 gem1971

    Posted

    I live in Los Angeles and just spent 10 days as an inpatient at Cedars Sinai for vestibular neuritis with excruciating headaches. The headaches are what kept me hospitalized for so long in addition to the zero balance and vomit inducing vertigo. But so many Drs said they couldn't understand the headaches. I know now these are VMs but at the hospital no one mentioned. I've lost 85% of my hearing on the left since sept 17th and while my headaches are lessening they are still persistent and debilitating. I had two Lumber Punctures and 4 MRIs while I was there. It's been a lot in 3 weeks to say the least. I do have several non specific autoimmune issues plus Hashimoto's so this may be an autoimmune flare. I've started tympanic steroid injections now to try and recover hearing while taking a high dose prednisone course, Percocet, Xanax and Zofran. Ugh.

  • clair52750
    clair52750 gem1971

    Posted

    Hi what are your symptoms? Anxiety can play a part in how your feeling which also can make it worse
  • mark451451
    mark451451 gem1971

    Posted

    Hi there.   Yes I have vestibular migraines.....there are loads of wierd symptoms....one of which is anxiety.....something that is triggered because of the brains reaction to being out of balance.   I was pretty bad for a while but once i went on meds have been much much better, so keep your chine up
Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.