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Vestibular Neuritis

Posted , 8 users are following.

helen34461
helen34461

Hi All, 2 years ago I had gotten a bad ear infection after a trip to Disney from pool is what doctors believe.  It was misdiagnosed at first so it severly damaged my vestibular nerve on my left side with 80% weakness.  Of course this was all found out after the slew of mri's, mra's, various vestibular testing, color/hot water in ears etc.  6 months of testing and 2 rounds of vestibular therapy have not helped me at all.  I am on my 4th

specialist in NYC who finally put me on acetazolamide for the sick side effects of nausea and brain fog.  6 months into these pills and now my body is starting to become accustomed to them and are not working so well.  My symptoms are

1) Overall unsteadness and dizziness (fall to the left)

I work in NYC so my commute walking is the worst, shopping too.

2) Brain Fog - how else to explain this just a horrible feeling in my head

constantly that very rarely feels better.

3) Nausea (without the pills I could just be laying in my bed and fell like

I am going to throw up)

4) Disgust and Depresssion over this whole mess I am only 51.

I am told by many doctors 95% of people recover, right side compensates for the left side over time.  This has not happened at all.  I also have never heard of anyone having it constantly for this long.  Can someone at least tell me they are the same?  Or hopefully give me some hope please?

Helen

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  • trisha99857
    trisha99857 helen34461

    Posted

    Does anyone have pressure in their head too or is that just me. It feels like I'm in a plane and the pressure builds up and I have to go outside when I at work to relieve it.
    • arria
      arria trisha99857

      Posted

      Hi Trish Hi, I looked at my information and did not find any references to your kind of pressure.

      There was this on Menieres but probably not you. Perhaps you could put your symptoms in an online site that diagnoses from symptoms.

      "Endolymphatic Sac Decompression:

      In Meniere's disease, the inner ear is under excess pressure. One ortion of the inner ear called 

      the endolymphatic sac is surrounded by bone. Although called a sac, in reality, the structure is more like a sponge. By removing the bone surround this area, pressure in the inner ear may be

      reduced, greatly improving the symptoms of Meniere's disease.

  • anne92030
    anne92030 helen34461

    Posted

    Hi helen, i have this issue one year and a half, cant deal with everyday life, i cant walk too far , dizzy all the time, the biggest issue is with my eyes, feel like they are totally messed up whatever i look near or far away, constént nausea and weakness...i did rehab last year, did barely nothing, dont know what to do, so depressed , i dont know how you cope with your life, i cant, i have 35% damage but i am sure i have something else because i cant walk as im too dizzy , do you think the depression is a cause or a consequence of it?

     

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