Posted , 6 users are following.
Anyone have this? Looking so hard for answers. Had meningitis at 4 and the vestibular physical therapists said it could be caused from that. This came out of nowhere and hit like a ton of bricks. Has anyone returned to a normal life? Or normal the way it was before VN. Looking for honesty here not just hope
0 likes, 8 replies
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Jehan7 janelle57186
Posted
gillian76726 Jehan7
Posted
Jehan, i didn't know what country you're in but if you have Natural Therapists around, take a look at Bowen therapy. I am just starting to have it. Because you mention you stretched your arm a lot when kneeling it rang a bell in my head (Although i have lots of those already with Tinnitus!), it is a hands on, very gentle tho, not like chiro osteo, but when the therapist gets the right spot you'll,know it! It is all to,do,with the muslces and nerves, and i can relate to what you say. If,i stretch upwards now my vertigo is worse.go figure!!! But seriously take a look at Bowen. Research the therapists a bit first,you'll be drawn to the right one for you.
And anyone else reading this might want to check,it,out.
janelle57186 Jehan7
Posted
tonya81770 janelle57186
Posted
Mine started 10 yrs ago with a sinus infection. Was devastated for 18months. Manageable for the most part but still always unsteady on my feet for 8 yrs. then 3 months ago devastating again. Vestibular rehab for 1 year back in 2008 that only made it worse...Now 9 yrs later they are talking about rehab again and I said no way! I took all the meds they pushed at me. The ones that helped the most are zofran, sudafed, Valium. I take 1 sudafed EVERY day, if I miss it my spins go crazy. The zofran is always close at hand and the Valium is used sparingly because doctors don't like to prescribe it the way it really works!
No music concerts, kids plays/concerts, areas with lots of noise, flying, ladders, looking up, real exertion of any kind. Work is iffy when I was working, FMLA for now.
Godspeed
janelle57186 tonya81770
Posted
Yes zofran is helping they gave me a few doses of Valium in hospital and it helped immensely. Also taking meclazine and migraine meds. Get headaches constantly throughout the day light sensitivity sound sensitivity is insane living with ear plugs intermittently. Can't drive or go to stores yet too much head movement for me to handle. Taking it one day at a time. So very frustrated.
gillian76726 janelle57186
Posted
Yes agree with Jehan and Tonya. Mine was overnight, woke up,with what I thought was am virus, head all,over the place, holding onto,walls to get,to bathroom etc. Pushed for a gp home visit (Hard to get in UK now u less yr v.old or dying!) as they expected me to walk (20 mins) to surgery!! Told the. I cld t get to bathroom hardly. Gp arrived, not a good one, 'oh it's a virus', blah blah. Osuhed, again, for anti biotics. They did help a,little, bit not enough. If he's given me anti virals there and then The,last 7 yrs cld have been v.different!
what i have leanred during this time of seeing ENT's, Audiologist, Nuerologist, Neuro,Otologiist, three diff 'goes' at VRT, all woefully useless and not even a definitive diagnosis. '.chronic disequilibrium'! is their best shot.
so what is the answer! A) learn to research,research yr symptoms. Use Veda, Vestibular Disorders Association,,they are a great source,of info on all,things connected with our problem.
Your Meningitis cld be a link, although med drs will not say it. It's a virus, bit,like Shingles, measles, herpes, Epstein Barr. Research these from sites that are,outside the box of regular medical as those will just tell you the same thing.
i use a lot,of natural products, good quality ones yr bidy can actually absorb and not,pass straight thru!! C! B12 (A complex is fine, and recently told B6 helps some people), Omega, Magnesium (So many people low in this and dont realise it, v.important mineral for us), Zinc, D Hugely important, lack of D can give u dizziness, although it's not the cause of our symptoms, it can exacerbate if we are v.low), oral spray ones best! Do everything to strengthen your immune system.
it's more a,matter,of 'handling',our selves as I have now accepted,it will not,leave me without a miracle. Bit like arthritis (Which i also have) and other chronic illness.
anne05147 gillian76726
Posted
did you mean you can get vit d spray. Just been px vit d tablets as bloods show low vit d, but they are too big for me to swallow at 20,000 dosage. Thanks.
tonya81770 anne05147
Posted
Get the gummies! I take gummy everything. It may not be the most bioavailable of pruducts but I am able to get them down!
In USA we don't have doctors that will come to your home so out to appointments is hard. Find a good dr that is understanding. I had to switch after 5 years because my dr refused to try other things to find out the issue or give proper medications for migraines and vertigo. My new dr is super super great! She has sent me to the best specialist in the area -not her fault they sucked- but she is still trying to find some answers and a drug cocktail to help.
Just took me off lamictal for the migraines but they are really bad so she will have to put me back on it or something else.
Take your time doing things and don't push yourself! You will have good days in the future.