Vestibular neuritis
Posted , 9 users are following.
I've been reading a bunch of old posts. I had my first vertigo attack on May7. On May 8- the entire house was spinning and I was violently vomiting that my husband took me to the ER. They stabilized me and sent me home with Mecclazine. Dx- BPPD Vertigo. Over the next couple weeks, I tried to work and care for my family. My brain was and is so foggy. On 5/24- I shook my head- and boom- hot sweats-room spinning and violent vomiting for 24 hours. Hospitalized the next day for 3 days. Nuero.ogist says it's now Vestibular Nueritis. I was prescribed a prednisone taper, zofran, mecclazine. So sick of it all. It's almost a month now. I have a full time job and my boss has been supportive- but I feel not for long. I have to go back tomorrow. I find the more I do- the foggier my brain is. Cats can and MRI ruled out anything else. I have been trying to move my head sideways and up and down. I'm walking stable now- I am so afraid that this won't go away or that it will take years, it feels like a brain injury. Anyone have any new success stories? They said I have a viral infection in my ear- my white blood count is high and fighting something. There is a swooshing sound at times in my left ear. I've been treated by chiropractors, I'm trying to get a referral to ENT. I have a new GP and my appointment isn't until 6/12. I'm so afraid this is my new normal. Just doing daily activities is hard- I don't know how I'm going to do my job effectively. When I talk to much or read too much my brain gets so foggy. Everyone says I look good- I am not.
0 likes, 12 replies
victoria78511 hmoosey
Posted
hmoosey victoria78511
Posted
Not yet. I haven't made it to an audiologist yet. I looked up a couple things on YouTube. I am terrified that moving my head will send me into a vertigo spiral. Vomiting, hugging the wall, falling. How long did it take for the excercises to help you? This has been so scary. I knew something else was wrong when everyone I spoke with who had the crystal problem kept asking why I wasn't better. What excercises do you suggest? Before I was hospitalized last week- I could not look to the left without being dizzy. Now I can briefly. I end my prednisone tomorrow. How long did you have this dreaded illness?
victoria78511 hmoosey
Posted
If it's the crystals in your ears whats causing the problem the crystals moving in your ears you got to find if it's your left or right ear if you turn over watch sided my you feel wores? look on YouTube Epley maneuver to treat BPP. As your doctor done it for you? If not try it at home x
victoria78511 hmoosey
Posted
If it's the crystals in your ears whats causing the problem the crystals moving in your ears you got to find if it's your left or right ear if you turn over watch sided my you feel wores? look on YouTube Epley maneuver to treat BPP. As your doctor done it for you? If not try it at home x
chris39583 hmoosey
Posted
I have been to so many different doctors been diagnosed with so many different things felt like giving up several times. Mine started 7 years ago on and off. I would be willing to bet there is an infection but in your sinuses. When I fugured mine out last year it saved my life. This might sound nuts but I did it as a last ditch effort and it worked. Go to a small walk in clinic like at the grocery store or pharmacy mine is called minute clinic. Go armed with all the symptoms of a sinus infection and tell them u have all of them. Get on antibiotics and write me back in a couple days and let me know how u feel.
Waffalobill hmoosey
Posted
If you don't do the epely right, you can make yourself much worse. Same with vestibular excersises. Better off waiting to see a professional. Preforming a epely and not knowing which side is the one causing the issues will make it much worse and making your recovery time much much longer.
david_inNC hmoosey
Posted
Sounds to me like it is VN. I had my "violent" attack in October '14. It has been a long road to recovery where you will feel horrible for quite a while. In mine they described the V nerve as being pretty damaged by the virus and it takes a long time for that to repair itself and you may never get back to 100%. I'm functional now but still have leftover symptoms....what I call bobble-head, ringing in ears, etc. Best advice: seek out a physical therapist that specializes in vestibular rehabilitation & therapy. It took me months to find the right person/practice that knew what I was going through and how to get the healing on-track. Also, NO ONE will really understand what hell you are going through. It is the most awful silent disease ever. There are support groups online (like this Forum) and perhaps one's local to you. Seek out others to share the burden of discomfort. Some drugs can help "tone down" the intense sensations. Mild valium and baclofen helped for me but seek either an ENT or neurologist to help. Local doctors had no clue....I had to go all the way to UNC Medical Center in Chapel Hill to get the answers that put me on the mend. Department of Otolaryngology. Lot's of theories and advice given until I found the leader in his field there and gave me hope and a plan.
David
brandon24318 hmoosey
Posted
I was reading your post and figured id comment to give you a little of my story. Last July almost 11 months ago my ear stopped up and i didnt pay it much attention figured it was water or something,didnt feel bad, but it lasted for days 8 maybe. On the 8 or 9th day i was coming home from work and stepped out of my truck and wham,vertigo horrible almost brought me to my knees,i tried to fight it and just wanted to go home so i try and make it,like 3 miles and started passing out,pulled over called ambulance to come get me. Got to the et and they thought dehydration so i dint know amd went with it. I eventually diagnosed myself with vestibular neuritis after about 15 drs said they didnt know,i got a ct and mri nothing on my brain and started thinking about my ear being stopped up and knew it maybe something in there making me so lightheaded and dizzy all the time,finally a ent sent me for a balance test and she conforms its my inner ear. She said it was bppv but theres been a little pain and its lasted for 11 months and bppv dont last this long. Anyways ive delt with it for 11 months,11 hard months been to er about 10 times and its been real hard to cope with. But ive been feeling better for the last month,a couple of spells but way way better. But everyones diffrent and you may wake up tomorrow better but mines has dragged out for a long time. I figured i would comment to try and help you being ive been going threw this for so long. It does get better but i thing the steroids made mine last even longer but they made me feel better when i took them only to come back after they were gone. I think you will get better but it could take a while
hmoosey brandon24318
Posted
Thank you everyone who has commented. My brain is so foggy I literally forgot that I posted this. I am so miserable and abnormal- I feel like I have a brain injury and will never be me. My dr. Gave me a second round of steroids until I see the ENT on the 22nd. I can only do basic things, barely. My family is sick of me I know. I don't blame them. I started PT, and she said my symptoms are confusing her. My right eye bounces- PT has set me back. Moving my eyes makes me dizzy again. It's like no one can actually say what the heck this is. Jim so discouraged that it's been 6weeks then I read you poor people have had it so long I am horrified for you and me. Hopefully the ENT will know what to do-because no one else does. Including myself. In can't take care of myself.
yolanda0423 hmoosey
Posted
Coming down with something like a cold I had chills then may8 woke up
Feeling not my self at all 100% so confused about how I felt I was freaking out so scared I went to the ER said I was fine had a UTi take the meds and hopefully feel better ..fast forward i was dizzy had brain fog , fatigue , head pressure , eye pain , migraines , severe anxiety (which I’ve never experienced) , felt lethargic just not my self at all .
I’ve had a MRI, Ekg,Eeg, Ct scan and multiple blood test done I saw a EnT last month he things is vestibular migraine but didn’t test me for anything I go tomorrow for a hearing test and my doctor said to ask for a balance test also but she did prescribe me Nortriptyline 10mg because the ENt things it has to do with migraines which I have suffered from Migraines from as long as I can remember . I see a eye specialist again this month also . But my doctor said to give the medicine a chance to work it’s been 2 weeks since I been on them I don’t really see a difference at all I do have good and bad days on the. Brain fog now and I started to get pain in my neck I still have brain fog I get migraines a lot now I get pressure in my eyes like a pain I’m always tired no energy it’s so hard to drive I feel like a drunkness like wonky 24/7 it’s so hard to conversate with the brain fog my speech can be bad at times also .. I’m not as dizzy anymore but I do feel off balanced a lot sometimes I feel I’m moving and I’m not .. it’s so hard
To deal with life like this after 4 months I have two kids a two year old and a 9 year old I know my husband is tired of it and sometimes things it’s in my head but I only wish it was I’m so over all this .. the only thing I ever had was Mano my doctor said but I didn’t have it anymore it showed I did but didn’t in the past 10 days .. it’s so annoying I’m getting depressed already starting to get bad thoughts I’ve never been depressed before either never knew how it felt . Sorry so long .
Yolanda
hmoosey yolanda0423
Posted
Hi Yolanda
i just saw this post from you. How are you doing now on the Norotriptiline?? I am doing so much better. I was prescribed this med too and it has helped. Most of my symptoms are gone. I am now seeing an otolaryngologist. Have you heard of this type of doctor? I have been slowly moved up to 30 mg now -I have my life back now. I still can't be a passenger in a car or do a full grocery shopping but I am me again. This has been so scary. The neurologist was a joke, but my ENT really tried to help me even though she said we were going outside her expertise. She referred me to the otolaryngologist. This doctor said vestibular migraines. Look up the symptoms and see if it matches you. I had every single symptom. I am very grateful for this site and everyone here because I read about the migraines and asked to try to treat me for this. ENT agreed, then I started to get better. Hope you are feeling better. I highly suggest switching doctors like I did until I found someone who said more than you will feel better soon, or I don't know.
hmoosey yolanda0423
Posted
if you aren't dizzy anymore and having balance issues I really suggest vestibular PT. I've been doing this since June and she has been working on my balance. It's getting better. Now we are working on closing my eyes and balancing. That is challenging. I have noticed that I have absolutely no night vision anymore. My eyes will not adjust to the dark. The otolaryngologist told me this happens with vestibular migraines. I just thank god I did not accept the vestibular neuritis diagnosis. Steroids for a couple months. Did hardly anything except gained 20 pounds.