Vestibular neuritis , a glimpse of HELL
Posted , 15 users are following.
Past few year i have been experiencieng dizzy spells on and off . Been to all possible specialists . Was suspected of having hypoglycemia initially , then came insulinoma , then paraganglinoma , then phecromocytoma . None of the noma s stood the diagnostic tests . In the mean while went thru all kind of cardiac check ups and alternative medicines for that. Come october 10th this year i had a terrible spell of dizziness which then evolved in to imbalance and abnormal gait ( I tend to deviate towards right ) Then some ENT guy made me go through MRI which again was normal . Blood work for thyorid panel and thyroid anti bodies were reported normal . He referred me UP to a neuro physician who did further testing like ENG, Balance assessment and it tuned out to be vestibular neuritis .
I am 43 , fairly active Male . This balance issue has pulled me down in a big way . I am unable to walk for a hundred memters without needing a course correction . People stare at me as if i have downed a few drinks . I am a vegitarian and have had no alcohol for last 10 years. I have a feeling that this thing is not going to end . The neuro guy says that this disease is self limiting and has put me on steroids along with threatment for vertigo and dizziness . He also added that 95% of the patients having this neuritis dont have a repeat episode . I feel so helpless and depressed . Been thinking of making a will . Despite the dr s assurances and confirmation from second opinions I still feel doomed . This is a cruel disease to have . Where every Dr says you ll have to give it a couple of months to resolve on its own . They also say that medicines for Vertigo ( cinnarizine etc) will delay the ultimate result as the brain is not allowed to compensate for the loss of balance . One has to try and keep following his routine so the brain gets a chance to compensate and retrain it self for new rules of balance . There are some parts of days that i feel very upbeat and then the dizzyness strikes and the cycle begins all over again . I feel exhausted all the time . Any body else is going through this hell ? Has any body tried any different approach like alternative medicines or some therapies ???
1 like, 74 replies
sue1610 kaykay1972
Posted
I have had this since January and I too like you have felt my world turn upside down, I try to remain positive and used to be a really outgoing confident person, I get very upset when i talk about this irritating problem and sometimes start to cry, i think pull yourself together woman ( am i depressed ? why do i cry ? ) I used to love walking at weekends but all that has stopped so no exercise for me !!!! i couldnt walk on the uneven ground. At first i giggled and made fun of it saying look no alcohol cheap way of being p**ssed but then its got more serious, and i like many others i presume begin to question whether there is light at the end of the Tunnel. I am awaiting my MRI results next week but anticipating that it will be normal. I went to physio yesterday at Derby Royal and she was really helpful and explained it in more detail thats its nerve damage following the virus. I wish i had broken my leg rather than having this. I too find shopping in a supermarket or anywhere stressfiul and begin to panic and want to get back in my car, again like many others have mentioned. I used to love browsing on my own. I dont know if others try to explain it like i do , i say when i walk on even ground i feel like my head is separate to the rest of me , i feel like one of those nodding dogs you sometime see in the back of cars??? i also fnd i am forgetting things but is that my age ( 53 and female ) I also sense memory loss and cannot bring things i used to like names etc instantly to the forefront, which again upsets me. I have began a new business so not off work due to being self employed and hope i can make the business grow. I was just curious if anyone was getting disability or is it called PIP these days. I am still managing to drive ( thank god ). I also have found that i have had to slow everything down like walking. It is most annoying and upsetting and i am glad there is a group like this on here, it has helped me by reading what everyone else is feeling or going through. We are still normal and i do think there are people worse than us ( me trying to stay positive )
Fudgeybear1 sue1610
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simone_bev65236 sue1610
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I'm new to this site would you mind me explain my problems I am a female age 57 thankyou