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Hi, new poster here. Have been suffering with VN for 10 weeks. I was initially diagnosed with a gastro virus due to my main symptoms being dizziness, nausea and diarrhoea but after seeking private ENT consultant I was diagnosed with Vestibular neuronitis. I secretly suspected it was this but think I was in a bit of denial as all the stories on the Internet speak of long term chronic suffering and that terrifies the life out of me.
This condition is hell! I am dizzy and nauseous 95% of the time with lots of ear and head pressure. When I get really dizzy and sick I also get diarrhoea. I've lost a stone and a half in ten weeks as I can barely eat. It even plagues me in my sleep with dizziness making me wake up and feel horrendous, until I get up and move about which eases it a little. I have been off work since the start and need to return soon which seems impossible right now.
I have started seeing a physio and have been doing VRT exercises for a week which have made me feel much worse. I used to have the odd few hours where I felt okay but not in the last couple of weeks. Can it get worse before it gets better? Reading, writing, typing, watching TV all make me feel Worse too. I feel like there is literally no pleasure in my life right now and I can't even get relief in my sleep. I have two kids and have kept as a active as possible, caring for them and trying to keep life normal for them so I haven't been hiding away.
I don't seem to have had the acute stage at the start which slowly improves, I've just been the same for about 8 weeks and worse for the last two.
im scared I'll,never get better. I would love to hear from anyone who did get better after this time, or at least improved enough to enjoy life again or who was able to return to work. Did VRT help anyone out there and how long did it take for you to notice improvements? Sorry for all the questions! Any advice would be very welcome
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