Vestibular Neuritis- any recovery stories?

I was diagnosed with VN back in January 2016 and did slowly start to improve.  However, at the same time I started noticing pain in my sinuses, more ringing in my ears, and just that overall heavy headed feeling.  I have been tested for everything and no one could figure out what it wrong with me.  I haven't gotten dizzy in a while, but just those floating whoa moments.  I'm always miserable and look like I haven't slept in days.  I am finally seeing a TMJ specialist and am so hopeful that he can help.  I never thought that the clicking and pain in my jaw could be casuing all the other issues in my whole head and neck.  I just got my mouth guard yesterday, so I have to give it a few weeks to see if it helps.  I hope and pray it does.  I'm also seeing a PT for my neck, he thinks my neck is jacked up and that could also be part of it.  Does anyone else have jaw popping and pain?  

Hi,

Not sure how to start my own post so I am guessing I have to add to yours.

I also am new to this forum. Here is my story:

Was on antidepression medications for years. Decided that life could be better than it was so after many years on same medication Dr. weaned me off one and on to another one at same time. As a result I became quite stimulated and I actually felt manic. I was feeling hyper emotional and agitated so I decided by myself to wean back off. I am not sure which came first my weaning or my dizziness all I know is I became sick. BP dropped to 88/48 standing, I was grey and had to be taken home from work twice. The dizziness and feeling of imbalance  caused the nausea. Zofran or (ondansetron) helped this symptom but the dizziness remained. Because I am also a nurse I nursed myself. I called the Dr that ordered the medications and told him what happened and he agreed to stop. The nausea was awful but I never vomited before or after stopping the medications. Driving my car and getting out of it was touchy. I felt drunk. I still feel this way but was improving. Went to Family Dr to get some nausea medication as (prescribing Dr was not comfortable ordering it as he did not feel the nausea was from the medication withdrawel after 1-1/2 weeks.) so the Family Dr. tried to do the Eply maneuver and it failed. She siad this could be a result of a virus. She sent me to PT for another stab at the Eply maneuver but it failed. The eye exercises have not proven to be helpful at all. I experience problems with typing, reading, and walking but able to manage without falling down. I thought I was improving until 2 days ago when I was so dizzy upon waking up.  I could not do much of anything and thank God it happened on a day of vacation from work.  I had an MRI that showed normal results of all vessles including vestuibular ones. There was some scattered intense hyper foci in the cerebral white matter that was not of significance accord to radiologist.

I have ENT evaluation next week. I also have new psychiatrist appoint next week. I thought this was all a result of going off medications I had been on for some many years but now I am not sure. I am sure that the new medication trial was making me feel agitated and hyperstimulated.

I really hope this goes away but if it is a virus and like the herpes simplex virus  (cold sores) from having had chicken pox as a child can be lying dormant and wreak havoc  when stressed or lowered immune system will  cause this (?) virus to rear it's ugly head over and over. BTW..... antivert is useless. This medication only made me  feel drowsy and does absolutely anything for dizziness unless there is an inner ear condition or inflammation. It is like an antihistamine like claritine or loratidine, allergra etc.

Thanks for listening and sharing. More on my situation as it develops

Jay

All, I have been experiencing many of the symptoms here for the past 8 months.  These issues appear to be exacerbated by inflammation without a doubt; I would suspect even the internal kind of which we are not aware.  Even before I experienced these symptoms, for the past 12 months I've researched fasting and its immediate effect on dampening inflammation.  Just this last weekend of October, after being tired of feeling crappy and nothing else to lose,  I tried a 3 water only fast.  On day 2 I was able to get a good night's sleep by day 3 felt like a normal person.  I noticed inflammation in my stomach and neck went down dramatically.  Day 4 was great also.  I've experience a bit of nausea on day 5 because of the food I now have in my stomach because of breaking the fast.  However, I know there is something here.  My strategy will be to control runaway inflammation with intermittent fasting and a paleo diet.  Let this discussion know if you decide to experiment with this strategy even if its a short fast just to feel normal a couple of days.  By the way, males require 3 days and females 2 for effects to manifest themselves.  I believe there will never be a pill (sometimes we need antibiotics or insulin) nor supplement (I take them) that will cure disease.  I've read an article once about a medication and their criteria for it being profitable:  will it keep the person alive for a long period of time and does that person have to consume it regularly.  The body has this ability heal but we never allow it to do so.  Just this year of 2016 Yoshinori Ohsumi, a Japanese cell biologist, was awarded the Nobel Prize in Physiology or Medicine on Monday for his discoveries on how cells recycle their content, a process known as autophagy, a Greek term for “self-eating."  The process he studies is critical for cells to survive and to stay healthy.  What speeds up this process?  Exercise and fasting.  I exercise now even do sometimes I will pay for it with a couple of crappy hours afterwards but nevertheless gives me a couple of good days.  For example, one day I was dizzy more than usual.  I had an opportunity to play volleyball.  Trust me I was scared, but I challenged my body.  During the game my body compensated and was not dizzy by end of 5 games.  I had a very good week after that.

Up to the end of October I noticed my diet was not great and I noticed a lot inflammation in my body.  Therefore, I decided to give fasting after all the research and I am willing to give intermittent fasting also a try alogn with a good diet.

Hi there -- So happy to come across this forum and read stories of others going through the same thing.  I just wanted to offer up the fact that the drug Betahistine has been quite helpful to me.  I know it's not usually offered in the U.S., but it has been prescribed for decades in Europe and Asia for Vestibular Neuritis.  It is believed to improve the circulation to the inner ear and thus promote healing.  It's not FDA approved for Vestibular Neuritis in the U.S., but only because it's not considered effective (not cuz it's dangerous).  Personally, I think there are a lot of politics involved with the FDA and that's the reason for the ruling.  In any case, you can still get the drug in the U.S., but it's just not prescribed for this.  I'm an American from New York City, but just happen to be living in Shanghai right now where it was prescribed to me by an ENT doctor here.  I take 24 mg twice a day which is the standard.  Also, I take Methycobal which is a form of vitamin B12 which was also prescribed by my doctor -- it's supposed to promote and support nerve growth.  Hope this is helpful to someone!  I wish you all many good days of feeling in balance!

I know it's been a,while , but I have similar symptoms for 5 months now ,it started with uveitis , a rare eye disorder , then about a week later I had a stomach virus and vomiting they said gastritis , but doctor said gastritis doesn't cause vertigo , so I might have vestibular neuritis ... hace you recovered, I have an appointment with ent on Monday

Hi cally please could you tell me I am suffering from labyrinthitis symptoms I feel sudden dezznes and vertigo and being sick and then after coupl of hours feel ok ,

So I feel very uncomfortable with this , so please could you recommend me something because I have read your comments the same I have but I feel my life very difficult with this I am not really happy with this ,

I went to doctor he said drink water and he give me some 5mg tablets for dezznes control

And he refer me to (ent ) specialist but it's take too long to identify the problem and too but also this is so enving thing going on and also the proper. treatment not stert yet , because only the Gp priscrib me dezznes control tablets he said when you feel dizzy then take one tablet otherwise don't take regularly

But this is not the proper treatment

So I request to you and anyone who knows about this please I really need help thinks

My symptoms are similar to yours , I had a stomach virus and I thought vertigo was due to that ,I haven't been diagnosed with vn but I have very similar symptoms

Did you find any relif? I have the same thing. It's been almost a year, so hard to live with this. Always swaying and feeling sick. I'm waiting on MRI results ...so scared incase they find anything wrong. My balance test came back good, There's no damage but said it could be a blockage in my inner ear. I was also diagnosed with Sibo and parasites recently, my doctor has been unable to cure with antibiotics so I saw s nstruropath who said this is likely the cause of my dizziness and nausea. We will see...

I see people are still viewing and responding. Thought I would tell my story maybe someone will find some help. One year ago I woke up felt dizzy and then with an hour I was lying on the floor unable to even lift my head. Just rolling over made me so dizzy I threw up. I could not open my eyes. I was taken to the hospital where I was tested for seizure, stroke or tumo, seeing my life was not in danger they gave me medication for nausea and sent me home to see a specialist. I was diagnosed with vestibular neuritis a few days later at 100% loss of nerve function on the right side. I had to move in with my mother as I was unable to care for myself. I was frightened I did not know what this was and my entire life had I come to a stop. Since the movement of my eyes causing the dizziness prevented me from being able to read I started with YouTube videos. most of the health information I found was from people who have been through this, doctors were little help as not much is known. I found the medication could prevent or slow down my brain from compensating for the damage once the virus had run its course. I began to push myself I put the medication to the side. I refused the wheelchair and grabbed the Walker then I began walking from couch to the TV. After two days I crossed to the kitchen. The next day i made a sandwich. I remember becoming so happy when I was able to cross the driveway without falling over. Every day I went further I tried harder no matter how bad I felt. I drank as much water as I could handle and I reduced sodium in my diet. I purchased hiking pikes to walk with when i graduated from the walker. I returned to work and after two weeks I was down to one Pike after another week I was walking on my own. I begin going to the gym. the first time I stepped on a elliptical I thought I was going to crash into the floor. My sensation was more like being on a raft in a hurricane versus a trampoline but eventually I got to the trampoline and I continued to push myself. No medication, lots of water, and walking walking walking walking walking. After a few months I started a spin class and a pilates class. Now Every once in awhile I have a small issue when I look to the right too fast l, when I tilt my head up too fast or if I look at crazy patterns or flashing lights. I have learned what triggers any spells and I avoid those triggers if possible. It is discouraging the slow progress but it's progress and every Improvement should be celebrated. It can feel very lonely. it is an invisible condition so people do not understand that you continue to struggle with it. I found comfort in watching the stories on YouTube and finding blogs such as this and knowing that there were other people out there who understood. It's been a year and I would say I am 98% healed. I have some struggles sometimes but I manage a normal life a stronger life I praise God every day. I look back on the experience and I appreciate the blessings that I received having experienced such an illness. I realized the support system I have and I realize the strength I have Within Myself and what a wonderful group I get to work with in my career for they were very supportive. Research experiences of others push yourself. If you can avoid medications do. increase your water eat a less salt and believe in yourself it's not hopeless. I had 100% loss and I am running, jumping, spinning my daughter in a circle, and I smile every day. I hope this wasn't too long. I've never told my story before I hope it helps.