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I'm now into the 8th month of what I think is vestibular neuritis (I've never had a proper diagnosis) but it is really getting me down.
Unlike a lot of people it didn't start with a bad spinning episode, in fact I've never had spinning or dizziness. Mine started with a very slight feeling of imbalance and wobblyness, feeling like I was walking on a boat, then over a month or two I began to get other symptoms like mild tickling, soreness and a blocked feeling in one ear and head fog. By far the worst symptom has been the head fog, which is so difficult to describe and cope with, Like feeling drugged or not quite 'in the world'. I've also had a few episodes of almost fainting, ongoing lethargy and loss of appetite, sometimes feeling sickly and bloated, all of which have only presented since the ear problem arose. Over Christmas, after one fainting episode I felt like I had a tight band around my neck, both ears were burning inside, severe head fog and wobbling, severe lethargy and pins and needles in my limbs for a week as well as shortness of breath.
This has really affected my life and I feel like it will never get better. I've been to the GPs umpteen times and there doesn't seem to be any help available. After a battle I was referred to ENT but I'm still waiting on an appointment. So far I've had blood tests, a few ECGs, blood pressure, balance / neuro tests and all have been normal. Anxiety is a huge problem as I fear something happening when I'm out (especially fainting) and I find it hard to concentrate at work. I've taken a lot of time off sick and can't take any more. Haven't driven since it all started and feel like a shadow of my former self as life is so restricted. I do have occasional days when I'm symptom free but they are rare. Please tell me there is light at the end of the tunnel!
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