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Vestibular Rehab??

Posted , 9 users are following.

nicole75069
nicole75069

Hi There, 

I was looking to see if anyone had positive experieces with vestibular rehab for inner ear problems? I'm supposed to start next week and was looking for some sucess stories to give me some hope. Thank you! 

Nicole 

0 likes, 23 replies

23 Replies

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  • Waffalobill
    Waffalobill nicole75069

    Posted

    They worked for me in the past. This last episode they are not doing a thing. Been doing them for a month or more. No luck. No idea why either.

    • nicole75069
      nicole75069 Waffalobill

      Posted

      Did you ask your doc/therapist why they may not be working this time?? 
    • Waffalobill
      Waffalobill nicole75069

      Posted

      They have no clue. Could be I have to untrained before I can retrain. Went to neuro today. Was a waste of time and money. Gonna keep trying excercises to try to get threw it.
    • nicole75069
      nicole75069 Waffalobill

      Posted

      have you ever tried to fly while you had symptoms? I was wanting to go out of state for christmas but I don't want to exacerbate my symptoms. 

    • elizabeth36542
      elizabeth36542 nicole75069

      Posted

      I fly quite often and for me the flying doesn't have any effect at all.  However, being in a large open airport can make me more wonky if I'm already having a wonky day, But, I get the same issue if I'm shopping in a large shopping centre or even a large grocery store.

  • elizabeth36542
    elizabeth36542 nicole75069

    Posted

    Hello Nicole,

    I had a very sever episode of vestibular neuritis just over a year ago. I was completely bedridden for 5 days and then weeks of holding onto walls to walk around the house. At first my specialist thought it was all migraine related as I also have 'silent' migraines, so it took some time to get a diagnosis.  I had a cloric test done at the hospital which confirmed that I had  Vestibular Neuritis with a loss of 83% of my balance on my right side.  In my case it took me months of Vestibular Therapy exercises, to help train my brain to take balance signals from the left side.  I did a lot of walking through the winter months and that has seemed to help even more.  I'm not completely free of the symptons as I still have days that I have trouble functioning - I refer to it as being wonky (brain fog) and that's when I know I need to get out and get more exercise and be active.  The more you do to get out and test your balance the better it seems to be....   hope this helps.

    • nicole75069
      nicole75069 elizabeth36542

      Posted

      Thank you for the comment. I've been trying to stay active but of course it's hard to do the things that make you feel worse! 

    • elizabeth36542
      elizabeth36542 nicole75069

      Posted

      I know.  It can be very difficult, some days I just wanted to curl up in a ball and lay on the sofa.  Try to get out and do things you enjoy.  Not sure where you live, but a nice walk on a trail or along the ocean can do wonders for your balance and improve you overall outlook.  Keep positive, it will get better in time.
    • kim34950
      kim34950 elizabeth36542

      Posted

      Hi Elizabeth, how are things going for you? How long have you had this balance issue and does it get better? Do you take a any meds that help?
  • cheryl02260
    cheryl02260 nicole75069

    Posted

    No!!!! Made me alot worse that took over a year to recover and that doesn't mean gone. Means somewhat better.

    Every time I read about Vestibular Rehab I shudder.

    • Waffalobill
      Waffalobill cheryl02260

      Posted

      My therapist started out to aggressive this time with me. Made me sick twice. Took 6 hours to calm down a little. I called her told her she said cut everything in half.
  • clair52750
    clair52750 nicole75069

    Posted

    Hi. I did a course of excersises which helped loads. Slow but worth it. Also like the other lady that replied I found that excercise helped and finding out things that upset balance i helped myself to work through them by doing them slowly and improving over time. It's all a slow process but I hope it helps you in the long run

    • nicole75069
      nicole75069 clair52750

      Posted

      Thanks for the comment Clair. How long have you been going through therapy? 
    • clair52750
      clair52750 nicole75069

      Posted

      Hi Nicole I did 12 weeks like I said was really slow. I've managed to get back to work and doing normal things. /sometimes if I'm having bad days I have to move a lot slower and use things to help me move like a lot of people have said walls or holding onto ppl. My ENT told me to keep doing excercise etc whenever I feel bad but sometimes when your really bad you really don't want to do anything that's going to make you feel worse.like most things you have to get worse before you feel better!

    • nicole75069
      nicole75069 clair52750

      Posted

      Yeah I've heard that it gets worse before it gets better so I'm preparing myself for that! What inner ear issue did you have? My neuro is still unsure. I never had any vertigo issues, I just woke up feeling very lightheaded and off balance one morning, 2 months ago and the feeling never left. 

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