Victoria - Update - Some News

Posted , 4 users are following.

I hope everyone is doing the best they can. Wrenched my back again, shifting sofa so I could change the throws, tunr the cushions etc.  Good job, but lower back didn't like it!  Not as bad as last time, but hot water bottle in order.

Met up with a family friend, I went to her house, she lives there with her Mum, it was on Mother's Day.  brought her up to date with events since Christmas, the AA and everything.  Then I mentioned osteonecrosis in the jaw, as my friend and I are obsessed with teeth, she looked at her Mum....who hadn't really been paying attention.  And then it comes to light that Mum has been taking AA for over 7 years, and has ONJ, I know she had terrible problems with her teeth and bridges. (Can't seem to get the latter to fit properly).


0 likes, 7 replies

7 Replies

  • Posted

    I hope she is no longer taking AA?  What a terrible side effect.  Nowadays the recommendation is that if AA is taken at all it not be for nearly as long as 7 years - more like 2 or 3 and then a drug holiday.  Best if it can be avoided altogether, of course.  
    • Posted

      You know, I know, she is very elderly , and I think it will be stopped, but won't do any good. Thanks for your message.  PS.  I appliedfor PIp last year, it was declined, going through the Mandatory Reconsideration process, I was so miffed at the deicion letter.  I asked for a copy of the Assessors report.  Came today, with description of a physical examination that I had consented to, and it is all fantasy, I didn't and the examination iddid not happen!  And I wasn't asked to spell 'world' backwards!  New thread for PIP maybe.

    • Posted

      Possibly your records were confused with someone else?  Maddening isn't it!  Yes, do start another thread - I know you'll get response from others in UK.  We have our own annoyances here in Nova Scotia. wink


  • Posted

    This is so avoidable as there is a simple blood test to be done prior to having teeth pulled to see if it is safe to do so after being on AA for three years or more.

    All GPs should be made aware and even doing some research of their own.

    My specialist said you do not pull the teeth in the usual way but rather cut down the side of the tooth and take it out that way if the patient is at risk.

    The name of the blood test is CTX and if the reading is less than 150 it is safe to pull the tooth out.

    It seems to be something every GP and dentist should know!

    • Posted

      I wasn't very clear in my post; my friends Mum has osteonecrosis of the jaw, and this is almost certainly caused by AA.  So she had loose teeth and tooth loss, because of this, she was not having teeth removed for e.g decay.  My dentist knows about biosophonates.  We would, I think, all prefer not to have loose teeth, or be faced with bridges and dentures.  It is hard life as a GP these days, General Practice, not specialising, my GP has noted everything I have found out about AA.

    • Posted

      No need for a sorry Kathleen, I am a bit nervous about posting, I am very anti AA and all its relations, but know I had an unusually bad reaction, I just want people to think, if you get my meaning (and you obviously do - think that is).  Friends of a similar age to me have said all their parents are on it, it turns up in the repeat prescription boxes, and one lady is hoping to reach her 100th year after next, doesn't go out now - rest my case. 

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