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I was diagnosed a month or two ago now with ME/CFS. All I do is sleep or rest yet still feel tired although the last week or so I had kind of felt like I had a bit more energy in me both physically and mentally.
Anyway, I've noticed, more so at night/when I'm going going to sleep, that my whole body tenses up!! I suddenly become aware of it so relax but before I know it I'm tensing up again!! I also keep getting random twitches, does anyone else get this and know why??
One more thing, my little girl and partner have very kindly passed on their cold to me and it has knocked me for six! I feel like I've took a massive ten steps backwards I'm falling asleep sitting up its hit me that bad. Will we (suffers of ME/CFS) always feel things ten times worse than others and take longer to get over it??
Thank you in advance for any help/info/experiences shared 😊 Xx
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