Viral treatment (valacyclovir aka valtrax) and sac decompression update

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Hi. I finished a round of 3000 mg per day for 30 day around November/December. It was not easy but I got through it and hope it worked. As you may remember, I was have a very difficult time recovering from the sac compression surgery that was done in May 2018. After several vestibular therapy sessions, I began to gain some confidence. I later reported that I was doing better and no vertigo. This week the worse attacks ever. The spinning was at such a high speed with nausea, etc it was practically unstoppable, I just feel short of calling an ambulance to be transported to the hospital for sedation. I am still not feeling well. My doctor has prescribed another round of valtrax in addition to my usual meds. I have to be very careful with my kidneys as well. I am seeing my neurologist soon to see what he thinks. I am so disappointed. I thought after all of this I just might get a break for just a little while.

By the way, has anyone used transderm -scop patches to stop vertigo attack spinning? I used zofran and diazapam but they can be very difficult to use during major attacks.

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  • Posted

    sorry to hear the surgery didnt work , I got my sac surgery in NOV and so far so good i can even feel when there is extra fluid it feels squishy . ear still numb. NO VERTIGO so far. Fingers crossed . Never heard of the meds you are on. Hope it works

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    • Posted

      HI. Thank you. Happy to heard that you're recovering well. I felt nothing squishy in my canal. Still had tinnitus but no vertigo until now. I am hoping it's passing and staying at bay. I always maintained a low sodium level and high hydration along with taking the diuretic and staying healthy. We all respond so differently to surgeries and medications.

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  • Posted

    My back story... sharing

    We live in a quiet residential neighborhood in the northeastern US. I am very convenient to all but not by walking. It's been 4 years since diagnosed with menieres disease and 3 year after retiring from a full career. It's been a struggle. I was always independent. I was about family, staying healthy, career and all that. I have my brand new retirement car in my driveway with 6000 miles on it and it is 2 years old. How ironic! My husband drives it sometimes but we have other cars. He is also retired.

    Have you ever been alone when a vertigo attack comes? For me it is extremely violent. I have no sense of gravity, space, or control. The room or surroundings spin at a rate that the human eyes cannot focus or see. I can't find my way to any point in the room or out. I am convulsing. I have sedation medication in multiple spots with water just in case I can get ahead of the full effect. It has to not worked. I hit my emergency cell phone contacts right away and stay put trying to focus on anything. Someone arrives fast because they know. It is a horrible situation. Many times I cannot get the meds down with help. This can go on for hours. My most recent episode last week after the sac decompression lasted 2 hours straight before I could get enough meds down to put me to sleep. I woke up still spinning for another hour. Finally, the meds took full effect.

    Before my sac decompression surgery, I was taken by ambulance to the hospital. It took them 4 hours to finally sedate me because they could not believe that vertigo was the culprit. The emergency room doctors finally contacted my ENT at home. He directed them to sedate right away. I remained hospitalized for a week. That is unheard of for many conditions these days. Then a week later the sac decompression surgery.

    So we are all so different when it comes to navigating this journey but am very happy to share and learn from other. It has truly helped me! Thank you all!

    Best wishes in good health....

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  • Posted

    bless you.

    I recently had the worst vertigo attack ive had since starting betahistine. It was truly horrific and i am having trouble recovering from this one. The fear has returned along with the panic.

    my consultant recently saw me and sent me away with no changes to my treatment and not seeing me for 6 months.

    I'm at a complete loss as to what to do and I am seeking home based employment as 12 hours on my feet just isn't an option any more.

    I sincerely hope that you begin to get better, we all deserve some kind of remission from this disease

    Sarah

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