Visanne (dienogest)-progesterone

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Hi everyonesmile I had a laproscopy 4 weeks ago to remove an 8 cm complex cyst on one ovary and a very small cyst on the other ovary but I also had grade 3 endometriosis everywhere which was also removed. Today, my specialist gave me a prescription for Visanne (2mg progesterone only pill) as he explained that this is the best way to prevent endometriosis from coming back and then requiring another operation down the track as apparently even though endometriosis was removed, it can still come back. My concern though is the side effects. He gave me all the information about the pill and also said that I may not get all the side effects or only some of them. However, I am very uncomfortable as, I already suffer from reflux and very sensitive stomach ( I cannot even take Neurofen or antiinflammatory drugs as I vomit) and in the past I couldn't even tolerate the normal contraceptive pill. Visanne's side effects include: nausea and also headaches (i suffer from recurring migraines), depression (i suffer from severe anxiety), lack of sleep (i already suffer from sleeping problems), back pain and muscle spasms ( i have scoliosis and disc problem and i manage through plenty of stretches, massage and physio but cannot handle extra muscle pain etc). This is very concerning as I am not sure that I would be able to tolerate any of these side effects especailly that I am only 4 weeks post-op and still having discomfort in general from stitches and still recovering. Has anyone taken this tablet before and has anyone tried a different alternative to progesterone. Thank you.

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  • Posted

    Hi! I am currently on Visanne to treat endometriosis. I have not had excision surgery yet because they feel like it would be high risk due to prior surgeries I've had. So we are trying this first. I have been on it for 3.5 months. Yes, I have experienced side effects. I won't name them because everyone is different. Some have improved and gone away completely. Some have gotten worse. I have kept a journal of how I feel each day, so that I don't get too narrow sighted and instead look at the overall picture. On the plus side - my pain from endo has decreased and I no longer get a period. It has also stopped the spotting that I had for 25 days out of every month. These have been huge positives for me because my period gave me excruciating pain and the spotting made me feel unclean. I also used to get insomnia during my cycle and I now have no problem sleeping. I would recommend giving Visanne a try, and trying to hang on for at least 3 months. Keep a record of how you are feeling each day - what is feeling better, what is feeling worse. You may find that the side effects go away, or you don't have them at all. And then compare the side effects to the benefits - for me, not having a period is a huge benefit and I am willing to put up with some side effects in lieu. You may find that what you get from Visanne, over-rides the side effects. Of course you may find that the side effects out-weigh the benefits. I would recommend to try and see what happens. I am committing to 6 months for myself, and then re-evaluating. All the best!

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  • Posted

    Laura-Lee is correct: not everyone gets ANY side effect, much less all side effects.

    Yes, absolutely, endo can come back.

    As to itchiness around the incision site, have you applied moisturing oil, lotion or cream?  For 20 years I've been taught that itchiness around any healing spot means that the skin is dry there and needs to be moisturized.  Of course you want to be careful not to get whatever you use into an unhealed area.

    Sometimes docs forget to tell us to take food with meds.  This is especially true with all pain pills & muscle relaxers.  The general rule is to take meds with at least 6 oz water and a bit of food unless otherwise specified, because these things soften a drug's harshness on our systems.  It's counterintuitive but if a drug causes/aggravates insomnia, take it right before you go to sleep.  The drug won't be digested until you're asleep and won't hit full efficacy until about when you wake up in the morning.

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  • Posted

    Hi there, i have been on visanne as well for 6 months and as mentioned by others here, it depends on the individual how your body will respond. as for me i only had one episode of sharp pain when i first started taking it and i immediately called the doctor who advised me to retry the pill after 2 days and it was okay for me for 6 months. i had to change the pill simply because i moved countries and the price of visanne in my current location is very expensive so i was prescribed with another combination pill which i think has not been working too well for me. so I will suggest for you to just give it a try as i believe it is a strong treatment and since you have quite a number of endo episodes its best to stick with Visanne for now. Ohh and my Dr asked me to start on the pill after one month from my operation date so im not sure if it is okay for you to start right after your operation. 
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  • Posted

    I am in a similar boat.. I also recently had a surgery and the doctor has recommended taking Visanne to slow the growth of the cysts/prevent them from returning. Did you end up taking it and have you experienced any of the side effects? I know the dosage is low so they say it's not common to have weight gain/depression/etc. but everyone reacts differently.  This is something I am also very concerned about so any experience you can share and how/what you decided would be so helpful. Thanks a ton.

     

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  • Posted

    Hi

    I was diagnosed with a 11 cm myoma in July 2017 and had it removed through laparoscopic myomectomy in December 2017. During the operation, my gynecologist discovered I had Stage 1 Endometriosis. She had it fulgrated as well.

    On my account, I didn't heed her advise to take Qlaira on the following month because I wanted a break from medications before I was on Lupron and it drained me. I did heeded her advise on the Depo shot in February. However, came May 2018, I started to bleed non-stop. Hence, I went back to my gyno and got an ultrasound. I had diagnosed with adenomyosis and endometrial cyst in my left ovary of 1 cm. I was prescribed Visanne for 6 months to help shrink the endometrial implants and cysts.

    I wonder if the DepoShot made it worse or was it because I did not take Qlaira as told. Anyway, I've finished one box of Visanne and side effects were tender breasts and irritability but it's still manageable. I'd continue with the medication in the hopes that it will stop endometriosis from spreading and shrink the cyst found.

    Btw, the only symptom I have of endometriosis now is mild back pain. I find that stretching, walking and pelvic floor exercises for women with endometriosis helps with it.

    I will have a ultrasound done in 5 months time to see if it the medicine works. I’ll update you on that.

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