Visceroptosis, Hypermobility of ligaments/joints
Posted , 8 users are following.
Does anyone have experienced visceroptosis, = when the small bowel loops fall into the pelvis and the transverse colon hanging down far below, too?
This anatomic situation seems to be not only liked to be overlooked by radiologist to note in the report (since there is no obstruction in our case and stomach in its place),
ut also be not recognised to cause pain, which is so logical to press on blood vessels or nerves.
Has anyone heard of that connection of visceroptosis and abdominal pain, or has/had it?
2 likes, 23 replies
Survivor85 sanya11314
Posted
I can tell you that surgery doesn't work (sleeve-gastrectomy, double-barreled ileostomy). Found a german girl that was tested and diagnosed with myopathic EDS concerning the gen COL12A1. I asked for a test today. Maybe you can get a test, too.
I got a port for venous nutrition. But it doesn't work. Using it results in more pain an pressure! Guess I have compressions in blood vessel, too. The other girl tried a jejunal feeding tube, didn't work, either. She has a lot of compressions, too. We are still searching for doctors and help in Germany but nobody knows to handle it, because of the plurality of problems and no effects whatever is tried (surgery, drugs,....).
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jackie1969 sanya11314
Edited
Survivor85
Did your sleeve-gastrectomy not help for stomach visceroptosis?
I have connective tissue damage throughout my digestive system, but my stomach is the worst distended into my pelvis.
Thanks
Jackie