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Vision changes with cfs

Posted , 6 users are following.

tyler04178
tyler04178

Has anybody ever had vision changes as part of they're chronic fatigue syndrome symptoms? I've been having a lots of vision problems like blurring Vision spots in vision and fogginess for the past 8 months and I've had everything checked. I've been to two opthalmologist and optometrist and also I've been to a neurologist and a neuro opthamologist. I have also been slightly anemic with an iron deficiency so I've seen a hematologist and the only thing that my general practitioner says is that my symptoms are a lot like the symptoms of chronic fatigue syndrome. I've read up a lot on chronic fatigue syndrome and I do see that it is likely to cause visual changes and vision impairment I just like to hear from somebody that maybe has experienced this first-hand. I also have a lot of the other symptoms of chronic fatigue syndrome. I always feel anxious and depressed I always feel kind of dizzy and off balance. I sleep as much as I can because that's all I want to do. I have a wife and two kids and this has taken me out of work and taking control of my life. If you have any advice or input on this please help me out. Thank you

0 likes, 7 replies

7 Replies

  • jackie00198
    jackie00198 tyler04178

    Posted

    Yes. I have retina problems, and my retina specialist thinks it could be related to my ME/CFS.
  • Keano59
    Keano59 tyler04178

    Posted

    Hi

    Yes I regularly get vision changes including blurred vision.Some times find it hard to focus etc.Not sure why but I suppose with the condition everything gets fatigued.I also get very down as can’t see an end to the fatigue and it’s associated problems.

  • karen94114
    karen94114 tyler04178

    Posted

    Hi Tyler,

    I get blurred vision and sometimes have difficulty focusing.I've started doing a little bit of easy yoga and get blurred vision after lying on the floor doing this! I also get mild dizziness too and get light headed when I stand up.From what I understand its due to the fatigue and not having enough energy. Have you tried any supplements to see if they help alleviate some of your symptoms? I know these don't work for everyone, and the jury is out as to whether they help at all, but I found that some supplements like Ubiquinol, D-ribose, and L-carnitine seem to make a difference for me.

    Hope this helps at bit! 8)

    • tyler04178
      tyler04178 karen94114

      Posted

      Hi Karen, I'll be sure to try this. It scares me so much to have these symptoms with my vision. It feels like I'll never get back to myself.

  • tyler04178
    tyler04178

    Posted

    I'm also wondering if there is any tests that could possibly help confirm the diagnosis of cfs. My doctor hasn't diagnosed me he just mentioned it

    • karen94114
      karen94114 tyler04178

      Posted

      Hi Tyler,

      With CFS/ME its a diagnosis by elimination; in other words there is no diagnostic test for it (yet), its generally diagnosed by ruling out other illnesses/allergies. Has your doctor done blood tests on you?

      I know for some people it can take years to get diagnosed. After three years of illness I had to suggest it to my doctor before they started exploring whether it was what I had. there are some good support groups on-line where you can find more information like Action for ME, and the Me Association.

    • tyler04178
      tyler04178 karen94114

      Posted

      They've done blood test and I'm mildly anemic with low iron. They've investigated it but found no cause for this. Also C reactive protein and esr levels are slightly elevated. I live in Maine, the doctors in Maine are not the best. Healthcare is rather scary here lol. As far as my eyes themselves they are 100% fine besides from two small retina hemorrhages in my right eyethat was blamed on blood pressure spikes. This did cause two very small blind spots in that eye but nothing that bothers me as my other eye picks up for it. Also had extensive neuro workup with Mri/lumbar puncture/4 day EEG in the hospital/and a second and third opinion. Everything besides the blood tests I've mentioned is normal.

    • karen94114
      karen94114 tyler04178

      Posted

      Hi Tyler,

      I have had blood tests done, and been referred for GET (which there is a lot of controversy about, but its still what they offer for CFS on the NHS here) and Pace support but beyond that no neurological tests. I'm finding pacing useful, it definitely helps me managed my daily routine and understand the impact activities have on my energy levels. There is a book you may find useful, the information on which has been moderated out of my last two posts! If you are interested in it let me know and I will private message you. Take care. K

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