Vision rant

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After my first migraine with aura three months ago, I began having visual disturbances (blurriness, flashes of light, floaters, after images, trailing, oscillating vision, etc.). I have always had perfect vision, so these new symptoms have been stressful and worrisome. I was told by my gp, obgyn, neurologist, neuro-ophthalmologist, and ophthalmologist that my vision symptoms are caused by migraine. I have suffered from menstrual migraines for 7-8 years, but only got one migraine a month on the first day of my period. Since my visual disturbances are 24/7, I was diagnosed with persistent migraine status.

So, today I go to my follow-up neurologist appointment and we discuss my ongoing vision disturbances and he says its highly unusual. He said persistent migraine status is rare and he probably only sees 1 patient a year with it. He then suggests I go to a new neuro-ophthalmologist. Of course, I mention hormones and he dismissed the idea, I am tired of going to doctor after doctor and being told my symptoms are unusual. I am not a crazy person. I was completely normal three months ago. How do you go blind overnight?!?! I have read hundreds of posts (peri/menopause and pregnancy forums) from women experiencing migraine aura and vision disturbances for the first time. I am 99.9% positive that I have a hormone imbalance (high estrogen / low progesterone). Why will no one help me?!?!

1 like, 19 replies

19 Replies

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  • Posted

    Hello Staci

    I think we have spoke before, I am 54 now (going into four years post meno) I never suffered migraine ever before until i reached menopause and have the migraine auras. They started up a couple of years ago, stopped and re appeared again. Before the auras I used to get blurry vision, watery /light sensitive eyes. It must all be hormone related, as I have read how alot of women suffer with this in menopause x

    • Posted

      Yes, of course I remember! I think you said the eye drops were helping and that you haven't had an aura in a few months. I hope you are still doing well. I am convinced my auras were due to excess estrogen.

    • Posted

      Oh yes you are the lady i was speaking too!, well the eye drops were working but this month I have had a few auras again and when i looked in last years diary, I had a flare up around this time in January then, could this be a seasonal trigger? I wonder x

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