visual snow and tinnitus

Christine

You did not tell us that you are exposed to loud noise.

TINNITUS.

Thi is not nice.

?Are you prepared to tolerate tinnitus for the rest of our life to pursue your passion for dancing?

I know what my answer would be.

FLUID IN THE EAR.

?Who did your hearing test today? Wsas it a dr? I suspect no becuse nio d would hve said what was said to you.

It is NOT usual to get fluid in the ear following flu/

The point is that you are not seeing the right people.

?You need to see an ear, nose and throat specialist for the tinnitus and fluid in your ear. Of course any luid in th ear will cause pressure. It should not be there. fdid this person take  a swab to check for any infection? Did this expert bother to t refer you to a specialist?

Please take note of what you know should be done.

I would aevise the following.

1. Get a copy of your audiometry test to see if you have any NIHL.

2. Get an urgent appointment o see a dr about the 'fluid' in your ear.

3. Get an appointment with an ophthalmologist for an expert eye examination .Alternatively go to casualty eye department.

Obviously you need to wearhearing protection. You still require it with tinnitus or deafness.You need to take this seriously.

Noise Induced Loss of Hearing is oermanent damage to the hearing beause the nerve is damaged. Don't let it happen to yourself.

 

Hello again delirious, 

With the dancing, I don't know. I really really really love dancing and performing and I don't want to ever give that up. Do I really have to choose between dancing and tinnitus?? Would it be okay if I wore earplugs during performances and classes?? I would just like to know because dancing is something I really do not want to give up. I've been asking my parents to send me to a dance class since 4 years ago and I'm finally in one, and I love it. I don't know though, right now, there is a new low humming in my right ear, and it's probably from the dance class yesterday. Do you think this low humming will go away soon?? I've read that exposure to loud noise usually goes away in a few hours. I just woke up with the sound, so I'm not sure. 

The expert I saw did say if I wanted to go to a specialist, I could get my doctor to refer me to one. I'm going to ask my mum if she can get me to see one soon. My ears are really scaring me but dancing and music are what make me happy. I don't know, it's a hard decision. 

Hello again Christine

The body is an amazing structure with terrific healing power.One has to keeppositive however if it was myself or my son who was suffering from tinnitus especially following exposure to loud noise then as hard as itsounds I would have to advise that they keep away from any noise for a while to see if the tinnitus clears up.

However the decision has to be yours and yours alone.

OPTIONS.

​Is it possible to dance with a quieter musical background I wonder?

​Have you told your dance teacher about your tinnitis?

I think you need to consider these points and to discuss them with your teache and parents as well as ear, nose and throat specialist and perhaps not go to dancing class for a while in order t see if our signs and symptoms disappear or improve.

Please try to talk to your parents .

Please keep thinking positively.

Hope the above helps.

​Take care.

Hello, Thank you so much again for replying to me.

Nope, I have not told my teacher about my tinnitus. I've always been very shy and I can't really open up to people easily. I have a new teacher and hes in about his 19-20's? He's in a dance crew so it seems like he is used to the loud music. Maybe I will try to talk to him so that I can still pursue my passion without having to live with severe tinnitus. 

Do you think wearing ear plugs will be okay though? I'll ask my parents if I can see an ear, nose and throat specialist and see what they have to say about it. 

I think you should abstain from any contact with loud noise. Also need to see and ENT specialist.

​It is hard to advise without seeing your medical history as well as hearing/audiometry test results.

​The fluid in the ear needs sorting out. Who did the audiometry test?

How did the prson who did the test know there was fluid in your ear?

I still think that you should be seen and examined by an ENT specialist and a neurologist/opthalmologist about the visual snow. If it were me I would not hesiate.

​I am unsure as to why you are unable to go to A and E or ER and take the letter that you sent here which was very explanatory and well written with you .

​

Christine

​Have sent you a link about visual snow.

Hello delirious, 

The person who did my audiometry test was some woman near the hospital in a hearing facility place (not really sure what they're called, but they do ear tests and have hearing aids and stuff), I'm not actually sure how she knew there was fluid in my left ear because all she told me was that there was fluid in there and it'll go away in a couple months time. 

My left ear has been ringing louder than ever nowadays though, although it could be from stress. I'm going to ask my parents to take me to an ear specialist after we go to the doctors to get referred to one soon. I hope they won't freak out on me again. 

I also had an eye test yesterday and the person said I had 20/20 vision. I don't think visual snow has to do with vision though so I think I should go see a neurologist or something soon. She mentioned that it could be a migraine but I don't think it is. I did have a few headaches here and there but I don't feel anything anymore and the millions of dots are still there. 

 

christine ARE YOU IN THE us/ I ask because i get the impresson thqt yu are having to pqay for your medical care etc. IMHO the woman in the hearing place does not sound as though she knows what she is taking about .

Youmuwt not rely on these so called experts. You really do ned to be seen by an ear nose and throat specialist or at the very least by a doctor in general practice.

I would defintely go and see your dr. You can tell him or her what the lady at the hearing test cntre said about you having fluid in tour ear and tell the d that she told you to go and see a dr!!

ou Chrsitine you have to fiht fire with fire if you follow my menaing.

I am concerned that you seem to have to lead the way at home. I am not here to cause a rift between you and your parents but it concerns me that you make constant reference to having to ask their permission to see a dr when in actual fact it is your right to do so. Children which is what you are classed as at the moment have their rights. it says so in the Childrens Human Rights Act.

You must get someone to examine and assess your ear porperly. It is simply not good enough for an amateur who is not even medically qualified to fob you off by saying that your hearing is okay but that you hve fluid in your ear. How does that person know? You must keep asking youself that question and get it sorted.

You also need to establish the cause of the visual snow. I do not understand why someone has not ordered an MRI scan of your head etc.

When u say that u hope that they don't freak out on you again  who are you referring to? If it is the dr go to another one. If it is tour parents then go to a dr on your own. The ball is in oyur court. It is your health at stake not your parents.

Can't you go to social services about the obvious neglect of a child?

typos. Talking about.

Hello delirious, 

I'm not sure how to go to the doctors by myself because we live quite far from one and what do I do when I get there?? Don't I have to book for an appointment first?? I'm not really sure on what to do once I get there, or how to get there, or what to say. I'm not a very good speaker. Maybe I could email a specialist? But I don't know who and if they are actual specialists or not as the internet is a risky place.

My parents are hard people to understand. It's hard to suggest things because they've already had bad experiences and tough times so I don't want to further aggravate them or stress them out. It's really my own fault but I can't really do anything without my parents getting stressed out and then it just makes things so much worse in my family. I remember my sister having a serious health issue (regarding her mental health) and my parents could not understand why she was being like that until after she recovered (which was about a year and a half later). I highly suspect they won't understand how it feels to have tinnitus either, so I don't bother trying. 

I definitely want to get some help however, but I don't know if seeing a doctor on my own is possible. Do you have any people I could perhaps email?? I read an article on a man with severe tinnitus who emailed a specialist his brain scans and was able to be treated. I don't think mine is quite serious but there is a new ringing (as said before) in my right ear now that's a lot louder and consistent especially at night. Yesterday night was a nightmare, I cried so much my right ear was so loud and consistent (before that it was softer and stopped once in a while) and hearing that made me cry even more. It's a vicious cycle of stressing and stressing more because of what your stress is causing. 

 

Christine

If you have a support worker or counsellor then they  can advise you.

 

Hello lee12629,

That's so amazing to hear that your visual snow went away. Do you have any ideas on what you think may have helped it go away?? 

Thank you for telling me anyway, it gives me hope  

Sorry i have no idea. The eyes can get some very wierd symptoms. Many thankfully are benign. Xx

Hi lee,

Are you sure it was visual snow? What did it look like,m? How did you get it. I'm looking for some hope!

Hi,im 60 now,i still get some visual disturbances,but i have other eye issues,the VS i was talking about was in my thirties,for example,Id look at a carpet and it would look all grainy and fuzzy,kind of like little bugs crawing on it,maybe it was hormonal,it lasted a few years,my site in other lighting was also that way....