Vitamin b12 injections

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Why does my health board say that vitamin b12 injections can only be given once every three months

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  • Posted

    Because that is the usual time period for B12 injections. Perfectly normal.
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  • Posted

    Yes I know that is standard practice but I feel so ill for four weeks before my next one is due. Other health boards base it on the patients needs and not a time scale. There are so many others in the same position as me around the world and so many of us have to struggle to be heard. Many people who have joined the Pa society buy their own b12 and self inject but for an injection that only costs 68 pence, it seems a shame that people have to suffer. If I have to go down the same route then I will but for the cost I wish it was something I didn't even have to consider. It seems to boil down to the same NHS problem...the postcode lottery.
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  • Posted

    I see your point, sorry you feel so bad before the next injection due. I am a nurse and was going on past experience with these injections mainly in the nursing home where I have worked for 20 years. Many patients have had these injections and after the initial ones at the shorter time period then they have all been at 3 monthly periods. I hope you can resolve this soon.
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  • Posted

    Thanks for your interest. The only way it can be resolved at the moment is to find a private clinic in my area to give me the injections, or to find someone to show me how to self inject. I'm not happy about that but anything is better than the effect that tinnitus, pins and needles in my hands and feet, and the overwhelming tiredness causes for that last four weeks. I also have Sjorgrens syndrome which gets so bad that it becomes difficult to eat for these four weeks but the only thing the doctor can offer is Mirtazapine. I do not like taking antidepressants as this is not a cure but it seems to be the answer to any sort of pain.
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  • Posted

    If the only way to get the extra injections you want is to join the Pa society (if not already a member) and buy them, then I would do that. It is not difficult to self inject. If they improve your condition then go for it. Good luck in your quest.
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  • Posted

    Thanks. I may ask my doctor to show me how to self inject but I don't want to get him into trouble as he is very kind and understanding but, as he says, his hands are tied as he has to follow the health boards directive.
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  • Posted

    my practise nurse told me in the sixty's it was given every month in the seventy's every two months but now it is given every three months because the formula has changed to make longer lasting in your body

    in other words it is supposed to last for three months before you need another dose

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  • Posted

    It may be supposed to last longer but it doesnt. Each persons body is different and the effect lasts for different times for different people. I now have injections every 6 weeks and feel much better.
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  • Posted

    HI

    I think you maybe right I was just reading an article that said b12 vitamin was water soluble and does not stay in the body for very long

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  • Posted

    Hi Roger,

    If you are getting b12 for pernicious anemia perhaps you should join the pa society ( pasoc). I got lots of help and encouragement from them.

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  • Posted

    HI

    I don't think the 3 monthly dose is helping me at all ,so I went online and ordered some syringes and alcohol swabs from amazon very cheap I may add then I found a site called GOLDPHARMA and I have purchased 20 vials from this site for £17 pounds the postage was free

    I intend to give myself an Injection of B12 every month as I think the 3 month is far to long to wait I am used to giving my seff an injection albeit with a Insulin pen for Diabetes

    I have looked at various videos on Utube and it is so easy to inject b12 into the thigh

    They inject b12 in the USA even if they have not got PA .I beleve Madonna used to give herself a shot before she went on stage

    Well thats America for you

    I suffer badly from balance and light headedness problems (suffered fpr about 15 years ) ,I was only told in april that I had PA I hope these extra injections of b12 will sort the problem out

    I might give the PA forum a try,I have been thinking about it

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  • Posted

    Hi Roger

    Glad you got sorted okay. Goldpharma is the company many pa sufferers seem to use. I too was going to go down that road but fortunately my doctor decided to let me have injections every six months as I was suffering so badly.

    How sad we have to go down this route for an injection that only costs 68 pence.

    I also suffer from balance problems and have dry mouth and tongue. My eyes dried too and I ended up having an operation last month for a macular hole. Don't know if this is connected to PA but everything seemed to go wrong at the same time.

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  • Posted

    well as you can see from my posting I have a host of problems

    hypothyroidisim for which I take thyroid medication ( under active thyroid )

    diabetes ( I take long and fast Insulin ) plus metformin

    arrhythmia ( for which I have a pacemaker ) and take amiodarone and warfarin ( rat poison)

    I am due to get my pacemaker renewed the battery is running down

    high blood pressure ( i take ramipril for this )

    high cholesterol for which I take simvastation

    as you can see I am a walking pill box I think my immune system packed up,but I think most of it down to hereditary parents uncles aunts going back generations

    And then to cap it all I was having my regular blood test for the HBA1C diabetes and the practise nurse said I had PA this was in april of this year and would have to have injections fore life

    What I can't understand is I have been having blood tests since the year 2000 why did nobody check for PA

    .as I think I have had PA since about the 1990's

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  • Posted

    Hi Roger

    Like you I have a catalogue of problems and have also had blood tests over the years but I only found out last June that i had PA. It was only when I said to the doctor that my mouth and my tongue felt as though they had been burnt that he had me tested for PA. When the results came back he said I must have had it for a long time.

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  • Posted

    Hi Isabel1,

    I was diagnosed with pa almost 5 years ago. I have changed doctors 3 times due to moving house etc and

    every nurse/doctor I have had I have told them that after about 2 months I get all my symptoms back! PLEASE let me know how you got your doctor to agree to give you them more frequently as I just seem to be getting

    fobbed off with any excuse to only give me them tri-monthly!

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