Vitamin D deficiency?

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For several months I've had severe fatigue, or rather complete deletion of energy and motivation, I don't feel tired but feel generally unwell. Doing just a few essential household jobs leaves me feeling weak and shaky and causes me to sweat excessively and overheat. Anything more energetic like hoovering or ironing and the sweat pours off me, dripping off my face and down my body. 

Shortly after these symptoms started a blood test showed my liver was inflamed and my GP said this was the cause. I changed my diet, eating lots of foods I read are good for liver inflammation and although a scan showed the inflammation had gone a few weeks later my symptoms are no better. Another blood test revealed vitamin D deficiency and my GP then said this is the cause and prescribed vitamin D3 tablets. I've also been spending at least half an hour outside every time it's sunny. 

I can understand my lack of energy being down to vitamin D deficiency but the only reference I can find to sweating is head sweating where mine is the whole body. I also don't have any bone pain although I find walking up the stairs much more difficult as my legs feel very heavy and causes breathlessness. 

Also a couple of weeks ago I had 2 days when I felt much better, more energy, more motivation and no heavy legs when I climbed the stairs although the excessive sweating was the same. 

I had another blood test last week to check my vitamin D levels and have an appointment to see my GP on Friday to get the results. But I have a feeling I will just be fobbed off again and need answers to the questions going round in my head such as what is causing me to sweat and overheat so excessively? And how come I had 2 good days only for the lack of energy to come back? I'm also often very clumsy, dropping things all the time, is this connected? 

Having no energy is horrible, I have to push myself to do everything and knowing how it's going to make me feel makes finding motivation even more difficult. And being inactive is causing weight gain which I definitely don't need as I'm already overweight. 

Please can anyone give me any advice that may help? 

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16 Replies

  • Posted

    How old are you? You say "tests showed your liver was inflamed" - what tests did he do? Did he also do ESR and CRP tests? 

    Unfortunately, being in the sun doesn't always help vit D levels - I spend a lot of time outdoors and never use sunscreen. So does my husband. Both of us were low on vit D, especially my husband, his level was in single figures! But he had no symptoms at all!

    There is "no compelling evidence that low vit D causes sweats" (I quote). However what you describe could all be found in an autoimmune disorder and should be investigated more enthusiastically than your current GP seems to be. I agree you are being fobbed off - been there, done that! I worked out what I had after 5 years of going to the GP. He never did a vit D test though.

     

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  • Posted

    Hi, I too am having extreme fatigue, sweating, dropping things etc. issues! The Dr thinks that my excessive perspiring may be due to 1 of my meds as a couple of them can cause it! The total No Energy has really become a huge issue in my family!

    If I have any very rare energy spurts, I do something little then I'm soaking wet! I had a cloth under my chin so that the skin stopped sticking, my daughter asked me why the bib! Just can't win!

    I'm going to the Dr's next week, I hope that she'll do every blood test etc known to man! I too am desperate so I understand exactly what you're saying! I'm not going to let them just dismiss me this time and I hope that you won't either, although I don't know how to challenge the Dr. do you?

    Good luck let us know how your Dr's visit went! Susan

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  • Posted

    Hi Susan and Eileen, thanks for your replies. I'm 58 years old and my inflamed liver showed up on a blood test, I didn't have the 2 tests you mentioned. I've had pain in my liver area on and off for about 4 years, at the beginning I was sent for a scan to check for gallstones as I'd noticed the only thing that helped/stopped the pain was reducing my fats to next to none. A couple of weeks before the gallstone scan I had one day when the pain was excruciating so when the scan showed no gallstones the GP said I'd probably passed the gallstone. But a few months later the pain was back and I've had it on and off ever since. I also have a hiatus hernia and I've asked a couple of different GPs if this could be the cause, both said it sounds like gallstones but when I explained about the gallstone scan neither took it any further! No, Susan I too don't know how to challenge the doctor and feel fobbed off a lot of the time. But I'd had the pain for several weeks after the inflamed liver diagnosis and when I told the doctor I was worried as my dad died of liver cancer she reluctantly sent me for the liver scan. At the time I was told I have a fatty liver then later the GP said the inflammation was gone (the GP made no mention of the fatty liver which just shows how they hold things back!). 

    The pain which is under my right boob eased right off, again by reducing my fats and I'm keeping my fat content as low as possible in the hope of preventing it coming back. 

    Just before this fatigue began I was dieting and had lost 4lb, had bought a treadmill and was feeling really good, determined to stick to eating healthier and lose more weight. But the fatigue stopped me in my tracks, finding the energy to cook proper meals is often impossible, (I'm still eating lots of fruit and veg though) but have been unable to use the treadmill since. 

    The sweating is something I've had for many years (when I used the treadmill or ironed I had to have a fan on full in front of me) but it has definitely gotten much worse lately and doing just a few small jobs causes me to overheat so badly I feel ill. Yet when I'm sitting still I always feel cold even when the weather is really hot. 

    As for testing for vitamin D deficiency I was shocked when the nurse told me they're now no longer allowed to test for this, due to NHS cuts! The only way they can test is when the doctor specifically requests it yet he said 85% of us are deficient! Unbelievable! 

    Sorry gotta go as I have a smear test in 20 minutes! 

     

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    • Posted

      If anyone is interested, you can get a vit D test done by the lab that does the testing for the NHS for £28. Google "city assays vitamin D blood spot test" and you can use it wherever you live in the world. If a load of you get together and order a batch it is slightly cheaper.

      It never ceases to amaze me how sometimes the NHS is so ill-informed: I know people who have been told "Vit D is a very expensive test you know, £200" when it isn't. Another item is the use of enteric-coated prednisolone on the grounds IT is too expensive. Using enteric coated pred is noticeably cheaper than using plain pred plus a PPI (anti-acid medication), which IS approved, and takes out one level of potential side effects as well as one dispensing fee. Many GPs cost the NHS money by refusing to prescribe more than one month's worth of medication even when it is something the patient will be on for months, years, sometimes even for life like thyroid medication. So 6 months medications can cost 6 dispensing fees instead of one. But they will push statins on to anyone - whether they REALLY need them or not (I know, that is disputed).

      Sorry - don't get me REALLY started!!!!

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  • Posted

    Been for my smear, I'd told my GP my prolapse was much worse and she told me to book the overdue smear and have the prolapse checked at the same time. When I told the nurse my prolapse needed checking too she said I needed to see the GP! Anyway she was unable to perform the smear as she said the vaginal walls have completely collapsed blocking her view. I told her I'm seeing the doctor on Friday and she said she'll refer me to a gynecologist. I know it means an operation, many years ago I asked a doctor how long before I'd need it operating on and he said 10/15 years. That was more than 15 years ago! 

    I'm annoyed as this is going to eat up the time with the doctor on Friday when I really need to spend the time on what's causing the fatigue and excessive sweating. I will find out if I'm still deficient in vitamin D (the GP had requested the test and once the nurse confirmed this the test went ahead last week). If the doctor still insists it's the cause I intend to ask how come I had a couple of good days and why I can find no mention of full body sweating in my vitamin D research. I want to push for more tests so fingers crossed! 

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  • Posted

    I'm sorry for the delay in updating but at least I have more to tell now! 

    The doctor said all my blood tests were normal except one, my thyroid test was slightly high for the second time. She said she would speak to a specialist for advice about this. So I was right my fatigue is not caused by vitamin D deficiency!

    I felt really hopeful an overactive thyroid is the answer but research told me I have very few of the symptoms with some of my symptoms being the opposite. These are weight loss - I am gaining, difficulty sleeping - I've been sleeping better lately than I have for ages and hyperactivity - no chance as I have no energy! 

    Fatigue is not mentioned, just feeling tired all the time which I don't feel, I feel lethargic with a complete deletion of energy and motivation and this is different to feeling tired. 

    But I do have 4 of the symptoms, increased sweating, breathlessness, frequent loose bowel movements and oedema. 

    Because the doctor said she will speak to a specialist I had to leave it at that but I admit I came away disappointed as I'd been so determined to push for more tests. But the doctor was true to her word and I've now received a hospital appointment for my thyroid for 11th September which I certainly wasn't expecting. Despite many of my symptoms not matching I'm praying the problem is my thyroid as it's treatable and I will then get my life back. Here's hoping eh. 

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    • Posted

      It depends what thyroid test was high - if it was the TSH (thyroid stimulating hormone) that is a possible sign your thyroid is not producing as much thyroid hormone as it should, so the body had increased the stuff that provokes it to tell it to make more. Low thyroid hormone levels, HYPOthyroid,  can contribute to weight gain and lethargy/fatigue and trigger a high level of TSH. When your thyroid hormones are high, that is hyperthyroid and you are overactive and lose weight, but the TSH will be normal or low. It isn't as straightt forward as you might think. 

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    • Posted

      See vit d deficiency itself can lead to thyroid issues dont underestimate the power of vit d it has been called as an hormone rather than vitamin it can do miraculous so take it bring it to normal level first atleast 50ng/ml and then see what happens.
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  • Posted

    Thanks Eileen, that all sounds extremely complicated especially as the doctor told me nothing more than the number was 7 where it should be 6! It certainly gives me more hope though as many of my symptoms do match with an under active thyroid which seems even easier to treat. This hope will help get me through the weeks until my appointment on the 11th so thanks so much for the information. I will update after this appointment x
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    • Posted

      I really do object to being patronised - they are my results and I want to know what they are properly please! Here where I live we are positively encouraged to collect our own results and keep them for reference - and if we have to attend another hospital for any reason.

      All the best.

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  • Posted

    I agree entirely, I was looking forward to finding out what my vitamin D was up to, it was 15 before but I realized afterwards all she'd said was all results were normal except thyroid. I could have kicked myself afterwards for not asking about it. 

    Doctors frequently fail to tell us about our results, I was told awhile back my blood test showed an inflamed liver but no other information was given. Researching this I found this can cause excessive sweating and overheating and also fatigue so I believed I'd found my answer but when I showed a doctor the article I was told off for taking notice of things on the internet! 

    I was concerned as my Dad died of liver cancer so the doctor reluctantly sent me for a liver scan. The nurse doing the scan told me I have a fatty liver, this threw me and again I could have kicked myself as I didn't ask her about the inflammation. When I went back to see the doctor she told me the inflammation had gone down (my research had told me which foods would help this and I'd been eating them in abundance). But I realized afterwards the doctor hadn't said a word about my liver being fatty! 

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    • Posted

      There are a few autoimmune disorders that would give you the same sort of symptoms, including the raised liver enzymes. If I were you I'd look for a more inspiring doctor because she sounds very lackadaisical. There are still some doctors who are terrified of the patient who is proactive and researches their illness. I went to uni too, a medical school at that. They don't have a monopoly on understanding well-written medical stuff.

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  • Posted

    Where I live there is only one doctors practice and getting an appointment isn't easy never mind actually choosing which doctor you'd prefer to see! The first doctor that told me I had vitamin D deficiency told me to buy some multi vitamins with added vitamin D! Again research told me I needed more than that, I've been agoraphobic for over 30 years spending almost all my time indoors so have had little exposure to the sun. I ignored her advice and bought some vitamin D3 tablets from the internet. But then I received a phone call from my surgery telling me I needed to collect a prescription for vitamin D, these were more than 3 times the strength than the ones I'd bought and were prescribed by one of the other doctors at the practice. Sounds to me like the first doctor made a boo boo! 

    The surgery is only a few minutes from my home so going there isn't a problem but my agoraphobia prevents me going to a different practice as they're all miles away. I was with a different practice but in the same building until a few years ago, had been with them over 30 years but unfortunately the practice closed down. Me and hundreds of other patients had to then join the practice I'm with now which I guess is the reason it's so difficult to get an appointment. I only go when absolutely necessary and rarely see the same doctor so have had no chance of establishing a relationship with any one doctor. I certainly don't feel I can trust any of them going by experiences in the last few years! 

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  • Posted

    Yeah kaydi it can be vit d as for me there was other symptoms as well such as heart palpitations derealization and depersonalization which attributes to anxiety disorder and vit d deficiency can lead to anxiety so first correct it as im doing quiet well after being on vit d so may you also be so take vit d for 3mnths atleast.
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    • Posted

      Its took to 4mnths yet not completely recovered but 90% has been done so it may take around 5-6 mnths in total and too after rogorous treatment initially the doct gave me 6lac iu injections weekly for 4weeks and after that 60k iu arachitol nano solution weekly for 3mnths and yet im on that completed four mnths. And for some it takes years as well to see complete recovery. But for me, im almost recovered.
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