Vitamin D deficiency

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I've been unwell for on and off now for almost a year. I remember phoning off sick a couple of times before feeling tired and 'achy'. I thought I was just being lazy and this was psychosomatic. Then I started getting really ill when I developed a sudden onset of neck/shoulder pain which is still an on going problem now although the pain has turned into discomfort/ache which I have learned to manage doing exercise and stretches. I also feel sensitivity on other parts of my body (like invisible bruises.For 6 months I was coping with my neck/shoulder problem (symptoms are crawling/tingling sensation in the arm, sensitivity to touch like its bruised and cold feeling and dull ache on my shoulder blade).

Then gradually I started developing 'flu like symptoms' without cough or cold but with tiredness/fatigue and dizzy headache which are intermittent throughout the day, until 2 weeks later I started getting throbbing ache in my legs and eventually I couldn't sit all day without getting restless legs and crawling/tingling sensation in my legs which caused weakness in my legs and worse when I'm going upstairs - and my knees keeps clicking. I went to my doctors who prescribed me with naproxen. And told me that I had something called Reactive Arthritis, which i thought was a misdiagnosis. Overall I though that it could be viral related

This time I've been off work for a week when I started to feel better after a week on naproxen. I came back to work for a week feeling like i thought I recovered. Then boom 2 weeks later gradually the flu like symptom came back with extreme tiredness / fatigue and I've been in bed since. I'm still achy all the time regardless. I have no energy to do anything, even showering is a struggle. Ive been in bed most of the time, sometimes I try to go out with my husband for a few hours but I come back home absolutely exhausted and the soreness/headache i get is a different level. Most of the time I feel like my body is inflamed.

So i decided to get a second opinion and i went to see another GP who referred me for a blood test. A few days later, my results came through and I have Vitamin D deficiency. Everything else they tested seem fine.I have a better outlook now though after the diagnosis, apparently it will take months for the treatment to take effect. I guess now they found something they will stop investigating further (which worries me a little bit) but i guess its process of elimination so treat one thing at a time. Would be great to hear from others who also has this deficiency and whether the treatment was effective?

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  • Posted

    Treatment usually is effective, there are exceptions. I think you should try more soups.

  • Edited

    so crazy how this deficiency causes so many symptoms, praying for better days tho!

  • Edited

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  • Posted

    Hi all,

    I've been reading through the thread and it's been very helpful.

    For the last three months I've felt terrible, tearful, hopeless, brain fog, memory problem, aches and pains, dizzy, unable to concentrate, needing to nap. I've struggled at work and spend all the time when I'm not working resting ready for the next week.

    I had blood tests, all came back normal apart from vitamin D deficiency. I'm on 3200ui daily for 12 weeks. I'm wondering how quickly I'll start to feel better, I've been taking the supplement for 5 days now and if anything I feel more tired and tearful. Did any of you speak to your bosses at work about your symptoms?

    Also to note that for the last three years I've had vibration like feelings in my body, particularly my feet and in the evenings it can feel like a rhythmic wave washes over me. As well as night terrors and waking unable to breath.

    I have a two conditions: Hypermobile Joint Syndrome (although I may ask about EDS as I gained a hernia from my appendectomy op I had in July 2020)and Pallindromic Rheumatism. The two conditions are associated with fatigue and joint pain so I do really have to fight for blood tests.

    It's made me wonder how long I've had a vit D deficiency for. Does anyone know how long it takes for the deficiency to show symptoms in the body?

    Thanks to everyone on here.

    All the best

    Deborah

  • Posted

    hi interesting reading about vitamin d deficiency.

    hard to believe it can cause so much misery.

    that vague feeling of unwellness, weakness and fatigue.

    got checked over by my gp and started on 50000ui of supplement, once a week for 6 weeks, hope it makes an improvement ,its hard to explain how you feel to people, it just is.

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