Vitamin D deficiency and bone changes
Posted , 4 users are following.
Hello,
I was diagnosed with a vitamin D deficiency July 2019 of this year. I have been taking VD supplements for almost 4 months now. Some symptoms have improved some not so much. I have read through many forums abut VDD and everyone seems to have similar symptoms I had before diagnosis and after during supplementation. However, I cannot seem to find anyone I can relate to in regards to bone changes. To be specific, the bones in my upper back, shoulders, and neck are always crunching, popping, and grinding. Even in my skull where my head meets my neck there is some grinding sometimes but the popping and crunching is EVERYDAY 24/7 its not painful really but it definitely is concerning. Also, it is not your everyday typical popping of joints. I know the difference between normal noises and not so normal noises. My doctor has already told me "it's normal," which I agree with that to a certain degree. All this started this year when I started having major issues with VDD. Can anyone relate to this? I do have upper back pain which I have had for a while and it is VERY SLOWLY decreasing but the popping is really weird to me. Being that VDD is linked to Osteomalacia I can only imagine it was from bone softening but I was not diagnosed with Osteomalacia.
0 likes, 15 replies
ptolemy y85411
Posted
I have bone crunching clicking sounds every so often in my neck area. It is so loud other people can hear it. It doesn't actually hurt, it is just a bit unnerving. I was told it is quite common place and now discovered my nephew has a similar problem. I was deficient in vit D and now take supplements. I think quite a large percentage of the population are low in vit D. Do you know what your reading is? I have had a bone density test and my bone density is pretty impressive according to my GP.
y85411 ptolemy
Posted
Thank you for your reply! My level at the time of diagnosis was 16 ng/ml. I was put on 50k units of D2 once per week for three months. I noticed some improvements but some days I felt worse! At the 7th week mark I felt terrible and decided to check my VD which rose to 55 ng/ml. I then went on 5k per day with K2. Haven't missed a day. I am rechecking my VD tomorrow so I am hoping to be in the 70's now as I have been on VE OTC for 7 weeks now. Some things have definitely improved like my upper back soreness, neck spasms and cramps, and anxiety and depression. However, all this bone crunching and grinding really is bothersome but glad to know I am not the the only one! How ling have you been dealing with VDD and how are you now?
vicky60291 y85411
Edited
Hi , yes i too have had some crunching ,popping and when turning my head it sound it rubbing against something ,but i dont have it a lot however my Dr likes to get to the bottom of everthing has told me it is bone healing along with tendons and ligaments getting stronger and doing their job .. ...
y85411 vicky60291
Edited
Yes! It felt like sand paper in my neck/head when I turned my
head side to side like you. It would happen more often a few months ago and then it stopped for about a month and just the other day I felt it again so I got a bit worried. All the crunching I feel in my spine and neck 24/7 and when I started supplementing with VD I started having it all over like shoulders, knees, elbows, even my pelvis which I've never had these issues before. I can only hope it's my bones way of remineralizing! Man, this deficiency is really no joke. I will never take my health for granted! You are lucky your doctor actually listens to you! Mine continues to think my symptoms are not related to VDD. Im in the process of switching doctors.
vicky60291 y85411
Edited
I hope yours heal soon , im glad we are in the process of healing , yes i love my Dr which is also a family friend . .. Do you have sudden pain in your ears or the feel of flutter in them only to last a few seconds ? I agree with you ,i will never take vitamins for granted again , our body needs them to function ..
y85411 vicky60291
Posted
Thank you! The only issue with my ears I've had is ringing. This happened more before supplementing. Lately it's come back but not too often. I do get flutters but in my heart. It's very scary! It doesn't happen too often anymore but when it does I get really scared!
vicky60291 y85411
Posted
Same here , heart flutters , , not to much thank God ! Did or do you have any swelling especially in you lower legs and feet ?
vicky60291
Posted
Oh im in 3 months and a week of VD supplements
y85411 vicky60291
Posted
No swelling in my legs or feet. My only problematic area is my upper body mainly my thoracic and cervical areas! One time I did experience tingling in my left foot for two days but it went away. Most recently I went out with heels on to a wedding and danced just one song, my right foot cramped up! My foot hurt for a couple days but it went away.
Michdonn y85411
Posted
Sorry for your problems, 3 1/2 years on my PMR Journey, many, many side effects, but no that one. Good on the rest of you PMR journey. 🙂
vicky60291 Michdonn
Posted
Hi , what were your symptoms if i may ask ? And are you recovering nicely ?
y85411 Michdonn
Posted
Thank you for your response. Is PMR linked to vitamin D deficiency? None of the doctors I have seen have brought this up to me.
Michdonn vicky60291
Posted
Vicky, my PMR was mostly in my legs ended up in a wheelchair. I have ringing in my ear from work, the Prednisone made it worse, other side effects, my tongue, terrible mood swings believe me I was Mr Hyde, lost control of my Diabetes. Now on 3 mg tapering to 2.5 and doing okay looking forward to another ski season, at the YMCA 3 days a week for exercise program and weights. So I think I am one of the lucky ones. Good luck. 🙂
Michdonn y85411
Posted
Vicky, I don't think so, but I do take a vitamin D3 supplement each day.
y85411 Michdonn
Posted
I see. I am hoping that is not what I have and hopefully I can resolve my issues with just Vitamin D but only time will tell. I hope you feel better!