Vitamin D Deficiency -anyone ever get better??

Ali,

I will mention it to my dr tomorrow when I go. I have be healthy up until this point. I appreciate your suggestions. I do see that a lot of other ppl with the vitamin D deficiency also have the same symptoms. I hope there isn’t something else wrong. Do you have vitamin d deficiency as well? 

Have u heard of the vitamin D council or the miracle of magnesium.

No I haven’t. But I found a group on Facebook and I have been looking into the protocol. I ordered the vitamins and switched to d3 so I hope for some improvements 

D3 . You need a baseline level then monitoring as Vit d can increase your calcium level and that can be dangewrous. Vit D is not just a vitamin it is also a pro hormone. You must not play around with it its dangerous to do so. Vitamin D toxicity. Sorry for rushed posting but have to do something.

My level was 18.1. I was to take D2 50,000 iu weekly for 8 weeks. Then switch to daily 5,000 iu but the d2 wasn’t helping so I switched early to the d3 and take 10,000 iu daily so far it’s been 3 days and I see my dr tomorrow. Hoping she will do bloodwork early to see if I’m absorbing t I’ve felt horrible this evening. I hate it. I was told to get magnesium and vitamin k as well so it’s ordered. 

 10,000 iu daily is an awful lot of vitamin D3 to be taking.

When I wa diagnosed with a vit D of 9 nnomols the endo prescribed 20,000 iu of Vit D3 a WEEK.

I also had to have weekly calcium levels done as well. He ordered a bone profile consisting of calcium level, vit D, parathyroid hormone level and phosphate.

​It is essential that your calcium level is checked for the first few weeks after starting vitamin D as Vit D causes the calcium level to fluctuate which can be very dangerous causing heart arrhythmias, palpitations , falls even seizures. Please take care and do not overdo the dose of vitamin D3.

Take care.

.

. 

I was not aware of this. I seen on here that others are taking that too so I didn’t see a problem with it Hut I see my dr tomorrow so I will ask her. Thank you! 

THe info is available on the internet. Google any forum on hyperparathyroidism..

Hi again

​I am unsure of which forum you have obtained your advice from re the dose of vitamin D BUT be assured that taking that massive dose of vitamin D is unsafe to be blunt. You really need to research the topic using reliable sources . Pls google Vitamin D toxicity. The cause of the vitamin D deficiency requires identifying. A baseline level will help the dr or endocrinologist to prescribe an appropriate dose.  You require calcium level monitoring for the first few weeks at least of commencing vitamin D. To commence it at that dose is asking for trouble tbh. Your vitamin D level is not going to rise in the space of a week. It takes several weeks depending on various factors. If you are taking phenytoin this prevents calcium being absorbed leading to low vitamin D .lPLease do intensive research for yourself on vitamin D and not rely on a forum that clearly has given you potentially very dangerous advice. For example too much vitamin D can cause kidney failure. You need your renal function checking. Sorry to be pushy but you really do to be cautious.

 

Did your doctor recommend 10,000 daily? As others have said vit D is cumulative in the body unlike vit C which you just pass out. What is your vit D reading? It normally takes at least three months to get any effect from supplements, by taking very large amounts just causes problems it does not make the deficiency improvement faster. 

My level is 18.1 when I had it checked 6 weeks ago. I was prescribed 50,000 iu weekly if D2 thefacebook group is called vitamin D deficiency Uk and they have a protocol listed. I will talk to my dr today at my appt but I did ask a dr if I could take 2 of the 5,000 iu daily and he said until my levels get to 49 then reduce to 5,000 iu daily. I have no other issues that I’m aware of. The protocol also suggested to take magnesium and vitamin k to help absorb the vitamin D. That without the cofactors it won’t work as good. I will talk to my dr about all this today but she’s not very educated about t and that’s why I turned to the forum and Facebook groups. They have a lot of success stories on there. 

Hi again Ashley I did not like to say but I agree your dr is not educated in Vit D most aren't.Neither is the forum. You do not say what these guidelines protocol is or who wrote it. I it was thw Vit D council forget it. They sell supplements so have a vested interest in promoting high doses of vitamin D. I do not understand why you take Vit D2 and not D3. Do you have a parathyroid issue or any kidney disease? Please take note of the others on here, they do know what they are talking about. Trust me. . 

Idk why the dr gave me vitamin d 2. I have no thyroid disease or anything else. I was in good health until now. So on my own because of what I saw on that protocol I switched to 10,000 iu of d3. Again I guess my dr is not educated. I will request my levels be checked. The ppl on that group all have the same symptoms as me. Dizziness. Headaches neck pain sometimes I have this pressure or fullness feeling in my head. I get anxiety and heart palpitations and somethings tingling. I hate feeling this way and I want to get better! I took the d2 weekly doses my dr prescribed for 5 weeks then switched to the d3. I was supposed to take it for 8 weeks then switch to 5,000 daily. But it wasn’t helping and I read that I should be in d3 so I switched. Maybe I should only take 1 of the 5,000 iu d3 daily instead of the 2. Should I take the magnesium and vitamin k like they suggested in that protocol? Idk who wrote it. But a lot of research online suggested taking t. I have ordered t but it’s not here yet so I haven’t started it. I’m 35 and have 2 kids and I’m afraid I’ll lose my job is I soon don’t get better. Do you get worse before you get better? Or does it just take long time? I have days here and there that aren’t bad but then some days are awful. Yesterday was one of those days and today isn’t that great either. I just can’t take it. I want to be better. 

Also I believe the cofactors help with the calcium levels if I understood correctly. The vitamin k that is. But not 100% sure. I’ll look into this. 

Ashley Check with your dr it is safe to take Vit K. Are u taking any hormonal pills ?

Vit D2 is always suitable for vegans and vegetarians while vit D3 can contain an animal source. Are you a vegetarian or vegan perhaps and that is why your doctor prescribed vit D2? 

It is fine for very depleted patients in the short term - but shouldn't be continued for more than 8 weeks without blood checks.

A sr did say I could.  Not mine and I see her this evening. My reading was 18.1

Hi again Did u see your dr?  Please do not take the vitamin D at such a high dose. D2 is usually prescribed for hyperparathyroidism, D3 for Vit D deficiency disorders. Please check with an endocrinologist if doubtful. I would ignore the values and references from the vitamin D council, you need expert guidance from a dr specialising in vit D deficiencies, this would be a endocrinologist , a rheumatologist or a good all round dr. 

My endo set my MINIMUM optimal target range at 75 nnomols but mostly it should be around 100nnomols. You can get a test done privately for about thirty pounds from a reliable hospital. 

The dr I asked said I could take it for 2 months then recheck my levels. I see my dr today. She said my thyroid was fine so idk why the gave me d2. I guess they have no clue how to treat it butbim asking her to research t and recheck my levels today. And I think I’m getting a sinus infection again. Idk why I keep getting them. I had sinus surgery to fix that but I guess my immune system is low due to the vitamin d being so low 

Disagree all you like - it is your right to do so so I don't mind.

However, I have just posted some links showing that 60,000 IU per week using high dose Decristal vit D is the recommended NHS approach to depletion. Here is the link again for completeness:

http://www.traffordccg.nhs.uk/wp-content/uploads/2014/05/High-dose-Vitamin-D-for-adult-FINAL-October-2012.pdf

Not my opinion, it is that of a health care system that uses evidence based recommendations, drawn up by experts in the field and which are also issued to GPs so that they don't have to wait ages for a referral to a specilaist to be able to treat. These have been the recommendations for at least 7 years. The document also discusses the various options for vegetarian, vegan and other dietary requirements.

This

https://www.aafp.org/afp/2009/1015/p841.html

says: "To replenish serum 25-hydroxyvitamin D levels in persons with vitamin D deficiency, one cost-effective regimen is oral ergocalciferol at 50,000 IU per week for eight weeks. The optimal time for rechecking the serum levels after repletion has not been clearly defined, but the goal is to achieve a minimum level of 30 ng per mL. Serum 25-hydroxyvitamin D levels should be measured again after completion of therapy, and if values have not reached or exceeded the minimum level, a second eight-week course of ergocalciferol should be prescribed."

In contrast, the NHS source says not to use ergocalciferol (D2) because of excessive cost but to use cholecalciferol (D3). Since both recommendations are from medical sources albeit one in the Uk and one in the USA it is obviously felt both are equally valid approaches.

It is possible that the low vit D is not the cause of your problems but a symptom - it is common for vit D to be low in autoimmune illnesses of all sorts. One thing that repeated sinus infections can be a symptom of is a type of autoimmune vasculitis - so it may be worth asking your GP if she considers that could be a possiblity. In that case  a referral to a rheumatologist would be sensible.

Are you a doctor? no, so why are you telling people what's causing their symptoms and what's not?