Vitamin D deficiency.........NOT Fibromyalgia!!!!

Over the last few years I have had bouts of tiredness, fatigue and flu like symptoms but always came back round and felt fine.  I also suffered from cluster migraines, again, these would disappear and I would feel fine.  Over the years various tests, scans etc would be performed and all results would show nothing wrong.  2 years ago I started getting migraines again and they go to the point that I was referred to a Neurologist.  During this time, I was prescribed Gabapentin (Neurontin) to help manage the migraines.  Once again, MRI scan showed nothing of any concern and blood tests were fine.  Then the migraines disappeared and I started to suffer from Trigeminal Neuralgia.  The Gabapentin dose was increased and strong painkillers were also prescribed.  This was in June 2014.  Then the TN just seemed to disappear and I felt fine.  In August 2014, one Saturday morning I woke up in pain, feeling sick, aggitated and eventually was physically sick.  As soon as I was sick, I suffered from a seizure and was admitted to A & E.  Again, all tests came back absolutely fine!!!  After this I started to experience a whole heap of symptoms - fatigue, pain, nausea, tremors, hot and cold, the list just went on!!!  I was referred to a Neurologist who advised that the pain was a secondary symptom to another problem.  Just needed to find the original source but it was out of his remit because it wasn't a Neurological problem.  So I was referred to a pain clinic and was diagnosed with Fibromyalgia!!!  I argued with the doctor that I didn't believe it and that I felt it was something else.  But no, they had decided it was Fibro!!  Over the next 18 months, things have got worse, I ended up changing from Gabapentin to Pregaballin but things still got worse. In January I made the decision to come off the medication.  My head instantly felt better, my eyesight was clearer, I also had a little more energy but the pains in my bones and joints were getting worse.  So a couple of weeks ago I went to the doctor about this.  She tried telling me that it was Fibro pain.  I told her that it definitely wasn't anything to do with Fibro.  So she agreed to run some blood tests.  I had the tests on a Monday and 3 days later I received a letter from the doctor asking me to make an appointment to see her to discuss the results.  I could only get an appointment for this coming Thursday 27th April.  A couple of hours after I rang the surgery I received a phone call from the surgery receptionist telling me that the doctor had just received another result from my blood test and a prescription had been written for me.  I asked what it was for and she told me that I had been diagnosed with Vitamin D deficiency.  "That's interesting" I said.  So I go the script for 3200IU Vitamin D3.  Now I don't know what the level of Vitamin D is but since I have found this out, I have been scouring the internet regarding this.  It all makes sense and I certainly know that I have NEVER been tested for this!!  Why not???  2 years of my life taking rubbish that certainly also causes Vitamin D deficiency.  I cannot wait to find out what else has been found in the blood tests but more importantly what the level is.  I am trying not to get cross about this but it is very difficult.  I never gave Vitamin D a thought and why didn't they 2 years ago.  I have read about so many people being diagnosed with Fibro and it turns out to be something that can be easily sorted.  I am just wondering if there is anything else I should be asking to be tested for because it looks like they hadn't covered all bases as I previously thought?????  Sorry for the long post but I just hope that this helps someone else who is going through a similar thing being diagnosed with something that it isn't.

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