Vitamin D deficient: pins, needles, tingling and scared
Posted , 6 users are following.
Hi everyone!
I'm 33yrs, female and was diagnosed with severe deficiency in the beginning of March (level <12ng).
Symptoms came up in the summer of '19. Started with burning feet sometimes at night and progressed in the months after. First more frequent, to more pain and sleepless nights. I was diagnosed with plantar fasciitis that explained my pain but not the burning sensation. Bone pain in my left wrist and my right hand became also apparent in these months.
Blood work followed and the low vit D came up (b12 was good). Not a surprise, Ive been at home a lot these past 2 years (ptsd). I am happy to find out that more people with Low D suffered also from PF so I could connect the dots. I'm sure a lot of other symptoms (tired, cold, pale, brain fog, sweating) that I mainly interpreted as PTSD symptoms could actually be from low D as well.
At the time of the blood test (2nd March), my foot pain was limiting my daily activities enormously. I'm active, cardio 4/5 times a week, eat a healthy diet. Now I couldnt even go out for a walk. A daily walk would mean I had to pay the price at night.. I became limited more and more. And tired.
When I began supplementing my body responded quickly. After dosing for three days (3x2000IE - I cant handle mega doses at once) all my symptoms became suddenly extreme. I woke up with pains in my feet, aching ankles, burning legs up to my knees this time, bone pain in my wrists. I was amazed. Every major and small symptom flared up. And it went together with tingling in my legs and arms, which I didnt experience before. To my great concern.
The fact that my periferal nerves play up is daunting to me. I have seen a neurologist last week and have had an EMG and full blood work. Results will come next wednesday. I have never been so scared.
Has anyone experienced worse symptoms or flare ups before it got better? And are there some readers who experienced tingling, pins/needles as well? How did it progress?
The good thing is that I seem to respond quite well to dosing. My level went up to 21ng after one week (After I took a total of 28.000). My plan is to continue D therapy with the supervision of a specialist. A dilemma is that I'm very sensitive to D3. High doses cause high calcium symptoms and is something to monitor. After the first 28.000 I had to quit because I got terribly ill of hypercalcemia. After 2 weeks of rest I tried smaller doses and took a total of 118.000 in the following month. Had to quit again because of milder toxiticy symptoms and now taking a break again until I meet with a specialist - which will hopefully be within 3 weeks. Getting my magnesium in check and will start a new regime with the right co factors.
Hope to hear from you. May I repeat, never been so scared of physical symptoms in my life. Vitamin D is extreme..!
bisous,
Clemence
(sorry for the long post. thank you for reading!
0 likes, 6 replies
Guest
Edited
Update: neurologist told me my nerves are functioning just on the edge of normal and abnormal. Vitamin deficieny should cause this.
It is such a relief and at the same time wow, I messed up my peripheral nerves because of a D deficiency. Thats something else than just one toe that goes numb every now and then.
My blood went further up to 25ng (61 nmol). Aiming for that 75-100 range.
viktor17916 Guest
Posted
Hi! How are you doing? I'm vitamin D deficient, too (12 ng in March 2020), taking 2000 IU sublingual tablets or spray a day, but have noticeable muscle twitching, although I eat a healthy diet and take magnesium. Have you issues been resolved?
amanda41569 viktor17916
Posted
Did you ever get your issues resolved? I have the twitching and spasms after starting vitamin D please help
joshuapryce1987 Guest
Posted
I think you should talk to your doctor (or a nutritionist) about vitamin foods you can take foods are more healthier than tablets.
amanda41569 Guest
Posted
Please help! I have all the same symptoms after starting a mega dose of vitamin D five weeks ago. I have pins and needles everywhere Did yours get better?
Awol55778 amanda41569
Posted
I have been experiencing pins and needles in my upper glutes and low back. It radiates across the entirety of those areas and actually sort of hurts worse with touch. The only change in my diet/lifestyle is a vitamin d megadose i started last week. How is yours doing now?