Vitamin D Levels
Posted , 4 users are following.
About a month ago I was told that my vitamin d level is 7. Yes, my legs hurt, knees specifically, and yes I'm tired often. These were questions asked by my nephrologist. I had a transplant in 2013, and quite frankly I'm accustomed to not feeling "normal." I do not remember what normal feels like. I just consider some days to be better than others. Now I'm taking the one pill a week RX to increase vitamin d.
Some people on the forums I've read talk about not being able to work, function, etc. I have worked through all, transplant (other than 8 weeks) and the other issues I have.
My questions are: how long should it take for my vitamin d level to rise, and why some people with levels higher than mine are not truly functioning in life? Did the low vitamin d cause that by itself? Did the side effects worsen over time?
0 likes, 3 replies
jenny19687 kimber123
Posted
Your values should be monitored by your GP.
donald89437 kimber123
Posted
HI,
My problems started with an aching knee that turned into being totally disabled over 6 1/2 years. The good news is I'm on the mend. My Endocrinologist ran blood tests for Calcitriol (Vit D) and an FRF23 for tumor. I had the tumor. I was diagnosed with Tumor-Induced Osteomalacia 4 months ago. Since then I went to the Mayo Clinic located the tumor they now knew I had. Surgically removed it and I'm on the mend to being normal.
Had they done the blood test FRF23 I would have known about the tumor and could have eliminated years of pain and suffering. Ask your Dr to do these tests and read about Tumor-Induced Osteomalacia. Dr. Tebben at the Mayo Clinic in Rochester, Mn. is very knowledgeable and can guide you through it if the FRF23 comes back positive.
Best of luck,
Don
Don
EileenH kimber123
Posted
My husband also had a level of 7 - he was fine too! I think it is partly everyone is different and in some cases the low vit D is part of an autoimmune disorder - i.e. it isn't just low vit D, there is something else going on which makes them feel more "ill". Plus - if you have been through renal failure and a transplant you have different standards!
It seems to take anything from a few weeks to a few months depending on the person and the dose. My husband was given 25,000 IU per week over about 4 months and his level was back to an acceptable reading. In the UK IRO 60,000 IU every week for about 8 weeks is commonly used and that is long enough for most people.