Vitamins for EPI

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Hi everyone just wondering what vitamins to take for exocrine pancreas insufficiency. 2yrs ago my nutritionist gave me probiota 12 (maximum strength), oil of oregano, omegaVail, vitamin d3 5000iu +K2 100mcg, multivitamins, ibergest. I haven't taken them since as it's so expensive.

I thought I mite take probiota 12 as I have sibo and vitamin d3 1000iu + 100mcg K2

I overdosed on vitamin d3 so I don't trust my nutritionist.

Is there anything else I should be taking?

I don't have my appt at the hospital until October but thought I'd start taking vitamins now.

he alsi advised me to follow the fodmap/scd diet but i dont eat meat so its not the best diet for me as i can't eat anything.

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  • Posted

    After blood tests, my hematologist advised me to take daily vitamins high in Folate (and Niacin, I think). Not all gummies are created equal. I also have prescriptions for B-1 and even more Folic Acid.

    Vitamin D3 (2000 mg, in my case) is very common for pancreatitis patients. I take that and Vitamin E.

    I do NOT take any other supplements, such a Turmeric, as they have worked against my blood thinners and are not well regulated.

    My suggestion is to ask your hematologist. Nutritionists tend to not understand pancreatitis. They also don't have access to your blood results.

    I just looked at the Low FODMAP list. I avoid apples (hard to digest chunks), cane sugar (bad for everyone), bread (causes bloating for me), ice cream (sugar again, and dairy can be tough to digest), beans (sometimes!), and all alcohol. Otherwise, I can eat most things on the list. Everyone is different!

    Maybe start with a less restrictive diet, like this one, and keep a food diet. Low fat, high protein. No red meat. Soft foods.

    https://www.pancan.org/facing-pancreatic-cancer/living-with-pancreatic-cancer/diet-and-nutrition/

    Note that it can take more than 24 hours for food to cause you problems. Try to eliminate the problem foods and keep a food log.

    Digestive enzymes like CREON or ZenPep will help a lot, too. I couldn't get by without them.

    Keep us posted!

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  • Posted

    Everything seems fine but the oil of oregeno - why is this indicated? It is a strong, broad-spectrum antimicrobial. Do you have an infection?

    5000 IU of D might be a bit much, but it still would be hard to overdose unless you are supplementing otherwise. You can take it every other day if you want to cut the dose.

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    • Posted

      hi yes i did have an infection and still mite have one according to my blood test. the thing is the only thing i take is probiotics and vit d3 as its too expensive. thanks for the reply

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  • Posted

    Hi eagle, Vit D deficiency is quite common so I'd continue that for sure just not that

    amount which seems excessive. I was told to take 1000IU twice a day which has

    brought me back to normal. I continue to take it twice a day, was advised not to stop

    taking it.

    My pancreas specialist takes blood to check all my levels and even though

    I have ongoing malabsorption issues vit D is all I need to take.

    A low fat diet, veg or not is the way to go. Not eating meat is probably helpful for

    you because pancreas doesn't have to work as hard to digest meat. I hardly eat

    any now. I also take Creon and a PPI which work wonders for me.

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  • Posted

    hi all thanks for your replies. i phoned the hospital today to see if any cancellations and managed to get one for next week. i have all my questions written down. is there a specific scan to check the pancreas? I'll update you next week if it can help anyone else on here

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