VLP Symptom

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I was diagnosed with VLP in July 2017 after having urination problems since March 2017. I am 67. Now I’m experiencing slight leakage and feeling like a few drops of urine still left upon rising from the toilet. Vulva have shrunk and vaginal opening is small but experience no pain or itching thank God. I am on no medication but use Vaseline as a protective barrier. Has anyone experienced any urinary problems since diagnosis and offer any advice?

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  • Posted

    Hi, I did find I was having some irritation on my urethra with the vlp. I occasionally take ural, it neutralizes acid in your urine, and it seems to reduce the amount of needing to pee moments. I do recommend medication, things will continue eroding if you don’t stop it. 
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    • Posted

      Hello. Thank you for your reply. You said to use medication or things will continue to erode. What kind of doctor do you see?

      My general practitioner and gynecologist have not been much help, neither of them recommend any medication. I think their knowledge of lichen planus is minimal. 

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    • Posted

      hi, i.had seen a gynecological dermatologist, who is an expert , luckily, in vlp. ive since moved To China and am now with a gynecologist who is limited in her experience in vlp but who will also deal with my inner vagina which has both lichen planus and lichen sclerosis . It's been frustrating going with western medicine as they will send you to hundreds of doctors to treat different symptoms of the same systemic illness.  I'm on methotrexate which ought to deal with it systemically But I've not got ontop of my erosion yet.  I was using clobetasol which dealt with the vulva but not the vagina.  The dermatologist put me on Colifoam whixh worked much better,  as a foam it was able to get everywhere.  I have no labia minora left and only a trace of clitoris,  so that's why I say you should not under treat what's happening . All the best

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    • Posted

      Hello again. Thank you so much for your information. I had no idea that LP could affect the vagina internally! I am in the Tampa Bay Area of Florida and hope I can find a doctor who specializes in LP.  Anyone reading this who can help, please respond. 
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  • Posted

    Hi guys I have recently been diagnosed with lp. I am quite discouraged because im only 29 and i have neen dealing with this for about 6 months now. But before I was diagnosed with lp I to had neen experiencing urethra problems, like after I pee it would still feel like I have some left in me an the feeling is very uncomfortable. Do you guys think that I to could have vlp cause i have a very low sex drive like i never get any kind of urge and its putting a strain on my marriage! Should i make an appointment with my gyn? Please any kind of info would help. My derm se t me to do a blood test to make sure I dont have hep c. I will updaye as soon as I get the results! But anything will help. Please!!!
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  • Posted

    I am 72 yrs. old and have had Oral Lichen Planus and VLP since 2010 and I have shrinkage of vaginal opening, but I use Clobetasol twice a week every week to hopefully stop the shrinkage, pain and itching..... I don't have any problems urinating thank God! Just keep in close contact with your OB/GYN to make sure nothing has changed. I always go in to see her twice a year.

    Good Luck!

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    • Posted

      Hello Linda:

      Thank you for your reply. I am in close contact with my GP but my OB/GYN dismissed me saying she doesn’t treat VLP just lichen sclerosus. I was using Clobetasol when I was first diagnosed last summer and will ask my GP to renew it when I see her next month. Thank God I do not have oral LP.   I don’t know if my slight urine leakage is related to VLP or just usual aging process since I’m 67. Will ask GP that too next month. 

      Good luck to you too!

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