VLP Symptom
Posted , 5 users are following.
I was diagnosed with VLP in July 2017 after having urination problems since March 2017. I am 67. Now I’m experiencing slight leakage and feeling like a few drops of urine still left upon rising from the toilet. Vulva have shrunk and vaginal opening is small but experience no pain or itching thank God. I am on no medication but use Vaseline as a protective barrier. Has anyone experienced any urinary problems since diagnosis and offer any advice?
0 likes, 7 replies
leanne60647 Gigi313
Posted
Gigi313 leanne60647
Posted
My general practitioner and gynecologist have not been much help, neither of them recommend any medication. I think their knowledge of lichen planus is minimal.
leanne60647 Gigi313
Posted
hi, i.had seen a gynecological dermatologist, who is an expert , luckily, in vlp. ive since moved To China and am now with a gynecologist who is limited in her experience in vlp but who will also deal with my inner vagina which has both lichen planus and lichen sclerosis . It's been frustrating going with western medicine as they will send you to hundreds of doctors to treat different symptoms of the same systemic illness. I'm on methotrexate which ought to deal with it systemically But I've not got ontop of my erosion yet. I was using clobetasol which dealt with the vulva but not the vagina. The dermatologist put me on Colifoam whixh worked much better, as a foam it was able to get everywhere. I have no labia minora left and only a trace of clitoris, so that's why I say you should not under treat what's happening . All the best
Gigi313 leanne60647
Posted
shandreka04393 Gigi313
Posted
linda32054 Gigi313
Posted
I am 72 yrs. old and have had Oral Lichen Planus and VLP since 2010 and I have shrinkage of vaginal opening, but I use Clobetasol twice a week every week to hopefully stop the shrinkage, pain and itching..... I don't have any problems urinating thank God! Just keep in close contact with your OB/GYN to make sure nothing has changed. I always go in to see her twice a year.
Good Luck!
Gigi313 linda32054
Posted
Thank you for your reply. I am in close contact with my GP but my OB/GYN dismissed me saying she doesn’t treat VLP just lichen sclerosus. I was using Clobetasol when I was first diagnosed last summer and will ask my GP to renew it when I see her next month. Thank God I do not have oral LP. I don’t know if my slight urine leakage is related to VLP or just usual aging process since I’m 67. Will ask GP that too next month.
Good luck to you too!