Vulva Burning- Drs at a loss. Help!!
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For 7 months I've had constant vulval burning and soreness. At first thought it was UTI or thrush, was treated for both with no improvement. GP said it looked like eczema around urethra/vestibule and prescribed betnovate as general HC cream hadn't worked. Seemed to have a bad reaction to steroid cream (stretch marks, extreme thinning of skin, swelling so bad a small tampon wouldn't fit, more severe burning + redness)so went to GUM clinic. They prescribed nizoral for potential seb derm and then lidocaine gel which numbed me for about 10 minutes then made the burning worse. After this I was referred to a gynae consultant. She said it looked like a typical eczema case and confirmed a reaction to steroid cream so prescribed estriol to use every night for 2 weeks to thicken the skin. Result: MORE BURNING AND SWELLING after about 5 days so I had to stop use. Seem to have had the same reaction to the cream as steroid cream?? I've been tested for food allergies which have come back clear, all STI and thrush/BV tests have repeatedly come back clear. Saw the GP today who refused to prescribe me oestrogen in any other form as that would be HRT and I'm only 23. I have been washing my hair over the bath for months, washing with Dermol, sleeping without underwear and wearing loose fitting clothing since it started but can't find a trigger. It's driving me insane I can't even sit at work!! The drs are at a loss as to what could be causing it and what would help without a biopsy which they won't do. Vulvodynia was mentioned but the consultant dismissed it after examination since she thought it looked like typical vulval eczema. I am sexually active but don't see my boyfriend that often and there is no correlation between when we have sex and the burning. I've tried condoms, no condoms, latex condoms and latex free condoms so ruling them out. Just to add, the burning subsides during my period and then starts up again after but drs have dismissed this since the pill hasn't helped it!!
Any suggestions would be great because it's driving me insane!
0 likes, 9 replies
lyndsey45525 alexandra_30382
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alexandra_30382 lyndsey45525
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Thanks for the reply!
I did wonder if it was pelvic floor related when I couldn't have sex/use a tampon but GUM clinic said the swelling was just as a result of inflamed dermis. Will mention this to the consultant. In the meantime is there anything I can do for it if it is?
lyndsey45525 alexandra_30382
Posted
Im still working on mine since I was just diagnosed a week ago. Ive been doing accupuncture and I start physical therapy next month. I have been dealing with this since January of this year. I had to travel to a different city to see a vulval specialist, as the OB doctors here just kept telling me to take a probiotic and prescribed 2 different steroid creams, lidocaine, estradiol and anti fungal cream that all just made me worse and flare up. It literally feels like acid is dripping inside. The specialist total me my pelvic floor muscles are overactive and they produce lactic acid and that is the boring that I am feeling. I did do a baking soda sits bath and that helped calm it a little. I did not want to do it too much because I don't want to change my flora. I did stop my probiotic because I read that the lactobacillus acidophilus probiotic produces lactic acid and peroxide which is counter productive of what I want. I went on line and am also trying some breathing exercises to relax pelvic floor muscles. I had a hysterectomy August 2017 and the pelvic floor muscle thing makes way more sense to me than anything else the other doctors have told me.
lyndsey45525 alexandra_30382
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lyndsey45525
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Suki_girl alexandra_30382
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alexandra_30382 Suki_girl
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Around the vestibule and vaginal opening is slightly erythemous, though this doesn't seem to be a measure of pain i.e I can look not inflamed at all but have much more severe pain than the more erythemous days. I thought normal skin was characteristic of vulvodynia?
Halvah5200 alexandra_30382
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Janidali alexandra_30382
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