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So glad to find this forum! My problems started a little over a year ago. I had bought some new underwear and while I washed them before wearing them I guess I didn't wash out all the chemicals. Immediately upon putting them on I felt a burning sensation on my vulva. I immediately took them off and put on another (not new) pair, but the damage had been done. After that I felt the burning pretty much all the time. Internet research led me to thinking it was just contact dermatitis, so I tried EVERYTHING people suggested on the internet: loose pants, cotton underwear, bleach and formaldehyde free toilet paper, not using soap down there, Vaseline, etc. NOTHING worked or even helped and some stuff made it worse. Leaving it alone also didn't work though that seemed to be the best of everything I tried. It also stayed really red down there all the time. So I went to see my gyno and she gave me some steroid cream, but it didn't really help. I went back to my gyno and she gave me a stronger steroid cream, but it seemed to make it worse. Then I decided to go to a dermatologist that specializes in vulvar conditions. She said she thought it was lichen sclerosis even though I never had any itching, only burning, and I don't have any white patches. She said that she didn't think my problems were related to the underwear thing though that might have helped trigger the problem that was always kind of there. She said to be sure she'd have to do a biopsy but I didn't really want to do that yet. She gave me another stronger steroid cream, but it also made it worse. She then told me to just use a zinc oxide cream down there but that also irritated it. I then started looking for natural remedies. I've been using a spray of witch hazel, a little vitamin E oil, a little castor oil, and lavender essential oil. It seems to help keep the irritation at bay somewhat but while it's not getting worse it's not getting better either.
My symptoms basically are burning, not all the time but some of the time, and I have this ring of skin around my inner vulva starting from the clitoris and going all the way down to the vagina. The skin fluctuates between red/purple and red/pink but it's a different texture than the regular skin (you can feel it's like a ridge between the regular skin and the red skin). I also developed this small extra "fold" of skin next to my clitoris that was not there before (maybe caused by thinning skin?).
Anyone out there with similar symptoms and/or can recommend some treatment options from someone who is so super sensitive that they can't use steroid creams (or most any other type of creams or ointments)?
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