Vulva soreness and burning

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I really need help. My vulva feels like its on fire but I dont have any other symptoms. There is nothing to see when I look. Have done some research and some people recommend Hydrocortisone 1%, or Coconut Oil or Vitamin E or Vaseline.

I really dont know what to try and feel like crying. I use Vagifem for VA and in the past have used Betnovate RD cream for vulva soreness which was prescribed by the gynaecologist who diagnosed my VA but it isnt helping this time.

Your help would really be appreciated.

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  • Posted

    there is another discussion on this and has some very helpful information on how to help this condition. look under my name for vaginal atrophy or vaginitis

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  • Posted

    this is terrible i had it for about 2 years. trimovate worked eventually but took a few weeks. very uncomfortable. coconut oil very good too for soothing. saw a specialist but nobody seems to know why this happens to some women. EMU OIL too quite good but no better than coconut oil you can buy in ASIAN SHOP for £3 no need to pay £18 in H&b

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  • Posted

    lynn, I think the cream you were prescribed is a milder steroid than clobetasol which many with Lichen Sclerosus use. I am using a milder steroid for LS, but am using a hormone cream for AV. Have you been diagnosed with LS or just AV? Has your doctor discussed getting the AV under control with hormone cream? You don't want the AV to lead to LS. I was vaguely warned by a gyn several years ago, but there was no specific mention of LS and I sure wish there had been. (Instead she mentioned cancer which really confused me, then she claimed she hadn't said it). The doc did tell me that hormone cream was much safer than taking hormones orally, but I assumed there was a chance the AV would not progress. I could have made a more informed decision about using hormones if I knew more about the serious threat of LS specifically.

    If I were you I'd see the doctor ASAP and go with a list of questions. In the meantime I'm afraid I don't know about calming down the symptoms you are now experiencing, but have read on this forum that some women use cold packs. Have you tried any of the other things you mentioned in your post? Good luck and let us know how you are doing.

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    • Posted

      Thank you for your reply. I have only been diagnosed with AV and prescribed Vagifem. I didnt realise AV could turn into LS. I am going to try cool coconut oil and if that doesnt help I will go to the doctors. Take care.

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    • Posted

      Hi Lynn

      I was diagnosed with VA over 2 years ago and prescribed 10 mcg vagifem, I decided to come off the vagifem after having the ML procedure due to family history of Bc and blood pressure, I cannot praise the ML enough, I had it done in Sept 2017 and my symptoms have only just returned i have booked in for the ML next week, I tried everything coconut oil helps so does natural yoghurt and ice, my worry is people mentioning lack of hormones leading to LS I have never heard this before..........

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    • Posted

      Thank you for your reply Kathryn. I am going to try coconut oil to see if it helps. I hadnt heard of AV leading to LS before today. All the best for your ML next week. Take care

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  • Posted

    i need more info - how old are you? Are you going through menopause? Women in menopause do get a lot of discomfort with vaginal atrophy, but that burning sensation you describe is more commonly associated with vulvodynia. Of course the two can occur together because the trauma caused to the tissues by VA can trigger vulvodynia. If a touch of a cotton bud on your vuvla causes pain then your nerves are registering touch as pain and are hyperactive and hypersensitive - that is vulvodynia. Try the cotton bud test - touch all around the outside and just inside and see if you feel pain.

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