Vulva soreness and burning
Posted , 10 users are following.
I really need help. My vulva feels like its on fire but I dont have any other symptoms. There is nothing to see when I look. Have done some research and some people recommend Hydrocortisone 1%, or Coconut Oil or Vitamin E or Vaseline.
I really dont know what to try and feel like crying. I use Vagifem for VA and in the past have used Betnovate RD cream for vulva soreness which was prescribed by the gynaecologist who diagnosed my VA but it isnt helping this time.
Your help would really be appreciated.
0 likes, 33 replies
olive8 lynn41704
Posted
there is another discussion on this and has some very helpful information on how to help this condition. look under my name for vaginal atrophy or vaginitis
lynn41704 olive8
Posted
Thanks Olive.
polly01044 lynn41704
Posted
this is terrible i had it for about 2 years. trimovate worked eventually but took a few weeks. very uncomfortable. coconut oil very good too for soothing. saw a specialist but nobody seems to know why this happens to some women. EMU OIL too quite good but no better than coconut oil you can buy in ASIAN SHOP for £3 no need to pay £18 in H&b
lynn41704 polly01044
Posted
Many thanks for the reply Polly, it is appreciated. I think I will try coconut oil. Can you please tell me how often to use it.?
polly01044 lynn41704
Posted
keep it cool as easier to apply, two or three times aday. trimovate will need a prescription
lynn41704 polly01044
Posted
Thank you for your reply Polly. I have purchased coconut oil and have put it in the fridge. Will use it after by bedtime bath. Take care.
olive8 polly01044
Posted
did you find the trimovate stopped the terrible burning and stinging. I have some in tbe house just about paranoid about using anything
beverly52803 lynn41704
Posted
lynn, I think the cream you were prescribed is a milder steroid than clobetasol which many with Lichen Sclerosus use. I am using a milder steroid for LS, but am using a hormone cream for AV. Have you been diagnosed with LS or just AV? Has your doctor discussed getting the AV under control with hormone cream? You don't want the AV to lead to LS. I was vaguely warned by a gyn several years ago, but there was no specific mention of LS and I sure wish there had been. (Instead she mentioned cancer which really confused me, then she claimed she hadn't said it). The doc did tell me that hormone cream was much safer than taking hormones orally, but I assumed there was a chance the AV would not progress. I could have made a more informed decision about using hormones if I knew more about the serious threat of LS specifically.
If I were you I'd see the doctor ASAP and go with a list of questions. In the meantime I'm afraid I don't know about calming down the symptoms you are now experiencing, but have read on this forum that some women use cold packs. Have you tried any of the other things you mentioned in your post? Good luck and let us know how you are doing.
lynn41704 beverly52803
Posted
Thank you for your reply. I have only been diagnosed with AV and prescribed Vagifem. I didnt realise AV could turn into LS. I am going to try cool coconut oil and if that doesnt help I will go to the doctors. Take care.
kathryn26445 lynn41704
Posted
Hi Lynn
I was diagnosed with VA over 2 years ago and prescribed 10 mcg vagifem, I decided to come off the vagifem after having the ML procedure due to family history of Bc and blood pressure, I cannot praise the ML enough, I had it done in Sept 2017 and my symptoms have only just returned i have booked in for the ML next week, I tried everything coconut oil helps so does natural yoghurt and ice, my worry is people mentioning lack of hormones leading to LS I have never heard this before..........
lynn41704 kathryn26445
Posted
Thank you for your reply Kathryn. I am going to try coconut oil to see if it helps. I hadnt heard of AV leading to LS before today. All the best for your ML next week. Take care
Suki_girl lynn41704
Posted
i need more info - how old are you? Are you going through menopause? Women in menopause do get a lot of discomfort with vaginal atrophy, but that burning sensation you describe is more commonly associated with vulvodynia. Of course the two can occur together because the trauma caused to the tissues by VA can trigger vulvodynia. If a touch of a cotton bud on your vuvla causes pain then your nerves are registering touch as pain and are hyperactive and hypersensitive - that is vulvodynia. Try the cotton bud test - touch all around the outside and just inside and see if you feel pain.
beverly52803 Suki_girl
Posted
Hi suki, I had the same thought, but can't speak from experience as I don't have vulvodynia.
lynn41704 Suki_girl
Posted
Thank you for your reply. I am 65 years old. I dont have any pain just a burning soreness. I am going to try cool coconut oil.
Suki_girl lynn41704
Posted
vulvodynia does cause a burning soreness. have you tried the cotton bud test?
Suki_girl lynn41704
Posted
coconut oil will sooth, but if it is vulvodynia you need to do a lot more to become pain free.see my post 'how i cured my vulvodynia' (click on my name and you will see my posts).
beverly52803 Suki_girl
Posted
Hi Suki, I have been trying to figure out how to find people's old posts. Glad you mentioned clicking on your name. I just clicked on yours and there seems to be a huge list. How do you find a specific one like you mentioned?
Thanks.
Suki_girl beverly52803
Posted
You may be on the activity tab. There is obviously a huge list for that because it lists everything ive done on here. If you click on the 'discussions' tab it gives a list of discussions started by me - that list is shorter 😉